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Graves is an autoimmune condition where the body has produced antithyroid antibodies that cause the thyroid to over-produce thyroid hormone. Hyperthyroidism is what made you so terribly ill. Once your thyroid is removed, the only way that you can be hyperthyroid ever again, is if you are taking too much replacement hormone. So, to answer your question, from my point of view at least, you still "have" Graves (your body is still producing those antibodies at some level or other), but the likelihood of the antibodies ever making you ill again is almost nil. There is typically "some" thyroid tissue left after thyroidectomy, if only to protect the parathyroid glands which sit at the four corners. So, there is "some" thyroid tissue (but not much) that can be influenced by the antibodies. So, if those thyroid cells become overactive, or underactive, you might need to adjust your replacement hormone levels in the future, to stay at "normal" levels of thyroid hormone. But typically, we get well again, and stay well despite the ongoing presence of those antibodies.
Hi I am new here and so glad I found this site. I have been worried about the diagnosis but glad I finally have an answer about what I have been experiencing for years. Hair falling out, digestion problems, moodiness and many more. After I found out that I had graves I was having heart palpitations and blood pressure was at stroke level. The recommendation was to remove the total thyroid due to the fact that I am allergic to iodine so therapy was out of the question. I had surgery on December 28th after one night at the hospital I was sent home. The next morning I couldn’t move my hands and legs and was rushed to the hospital in alot of pain. Appearently my calcium levels had fallen and I was experiencing tetany. After four days in the hospital I am home now but my incision site is a little swollen and red. I am so tired I sleep all of time and have no energy. Still feeling alot of tingling in hands , arms and face after 1200 gms of calcium a day. And I still don’t understand do I still have graves and will have other symptoms or since thyroid is gone is disease gone? How long will I feel like this? I am a 36 year old mom and wife so I need all info I can get ! Thanks for reading I am anxious for answers! Thanks
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