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  • tmeg8
    Participant
    Post count: 2

    after thinking my heart was going haywire, was in hospital for 5 days, found out it was Graves. Any good advice for someone newly diagnosed?

    Bobbi
    Participant
    Post count: 1324

    Hi, and welcome to our Board.

    I think the best thing anyone can do in your situation (which was where I was fourteen years ago) is read everything you can get your hands on about how the thyroid works, what the tests are that indicate malfunction, etc., and information about treatment options that is OBJECTIVE. We have three treatment options — all of them are, in general, safer than remaining hyperthyroid. And, know, that we do get well again provided that the hyperthyroid condition didn’t go on, untreated, for too long. As I said, I was diagnosed fourteen years ago. For at least the last thirteen years, I have had my health back. And that is the typical story for most of us.

    Also, be careful of the information you read online. Some online info is good; some of it is outdated, or misinformed; some is dangerous. Our board tries to provide good info, but it can be discouraging to a newcomer because folks seem so very ill. They are. The people who get well again typically do not spend time online posting to boards like ours. It can make things seem awfully grim. But we have a few folks here (me, James, Kimberly, Ski) who stick around to try to provide perspective.

    If you have questions, feel free to ask us. We won’t tell you what to do, but we can try to explain what is going on, how things work, what technical jargon means, etc.

    Wishing you good days soon.

    tmeg8
    Participant
    Post count: 2

    Thanks for the good information. I have had my initial endo visit and she is great. She turned me on to this website so she must think the information here is good. I am also a nurse and have some idea how things work and dont work. But this "threw" me. I am now trying to decide what kind of treatment is best for me and am leaning towards the radiation tx. but first we are trying to get my levels down to a more manageable level.

    Thanks for the advice and I WILL be reading everything I can get my hands on and will be checking here often for more information.

    Its nice to know that I can get well.

    Thanks again for the encouragement

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