[runlacie]

#1069358

Hey Mike-

I see your in Pittsburgh- I am 40 mins north up by New Castle. Can’t believe the Pirates just traded my 3 favorite players. At least we have 2 pro teams, huh? Anyways, hope you found a good endo there. I am looking to switch after I am normalized as I don’t think the nurse at my endo’s office likes me much.

As for the heart racing at night thing, I get it all the time. That’s when it has always been the worse for me. As soon as I lie down it is like a switch gets turned on and sends it into overdrive. Even now, I am feeling pretty much better during the day and my heart still does that at night. I try to reassure myself that it is fine and usually fall asleep with the TV on as a distraction. You could call the doc about bumping that dose up a bit? Hope you feel better!

[mongo26]

#1069359

Runlacie[*] – yep, I’m a full blooded Pittsburgh-er. I don’t know if I’ll ever understand the management decisions of the Pirates. I do know that after 17 years, it’s time to wipe the slate clean with a fresh team. Although, without those guys, it will be hard to watch.

Pittsburgh Pirates: Rebuilding Since 1992

I see an Endo in the Sewickley Hospital. So far so good. He seems to be very knowledgeable and empathetic, which is nice.

Everyone else[*] – Thanks for the replies. I tried calling my Endo, but he is on a "summer break" and won’t return until 8/10, a day before my next appt. Oh well. I will try going to bed with the TV on – or maybe the radio so it’s not so bright in the room. Maybe the "noise" will make me focus less on my heart beat. Then I’ll set up a fan to blow right in my face. Ha. Seriously though, thanks for the replies. It makes me feel good. ” title=”Very Happy” />

[irishfam]

#1069360

Hi Mike, yes it can take a while to feel better. I was diagnosed with GD 6 years ago, and had ALL the symptoms. They put me on propylthiouracil, no beta blockers, so it probably took me a little longer to start feeling the effects. You really have to pay attention to what you are feeling, and micromanage your progress. I too, was "off the charts" having been misdiagnosed for a long time. I come from a smaller area where GD is not seen often and not enough people in the medical field who understand it. I opted not to be radiated and shot for remission, which I achieved 2 years ago. What a lot of the medical profession don’t like to discuss, is remission. So I suggest, getting online, and reading all you can about the disease, and your options. I am still learning now 6 years later, and understand a lot about it. I have even taught some of the medical profession here in my town a few things..So go figure. Hang in there…Learn, learn, learn. Good luck.

[mongo26]

#1069361

Thanks, irishfam.

Yeah, my Endo thought I was suffering pretty badly…and I work in the investment industry, so the extra stress and anxiety is NOT good. That’s why he prescribed me the beta blockers – to hopefully reduce the GD symptoms.

I’ve done a good amount of research, and I think (all though some of you may disagree) that I’m also going to shoot for remission. I am going to try to avoid the RAI and surgery if I can. We’ll see how my next test results look. So far I’ve had no reactions to the meds…so I’ll stay on them as long as it takes for me to get into remission.

Congrats on your remission status. Do you still take any type of medication now that you are in remission, or are you truly "in remission" and don’t require the meds?

Thanks,

Mike

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