[dhuston]

#1059487

Hello everyone,

My name is Diana and I was dx with grave’s in 2007, I also have TED, I was also recently dx with severe osteoarthritis in the shoulders/knees/and hips. I currently take 80mg of inderal a day and that is it. My TSH is always at the bottom of the normal but I have said for years that they don’t really know what my normal function level was… or is….

Yesterday I spent the day hooked up to a heart monitor at emerg as racing at 146 bpm when hooked up to the machine, and blood pressure was 143/98. They said that I was slightly elevated, I was sweating, shaking, and short of breath. After 3 hours there I was down to 98 bpm and 133/88 for bp. They sent me home with a holter monitor for 24hrs and said if not better by wednesday to come back…..

I truely think that I am having a grave’s spell as I have lost 8lbs since friday and can not get my heart to settle down. As soon as I am up walking I feel my heart rate in my head and my whole body. Or something else is going on…. My dentist (yes dentist) is convinced that I also have lupus…. my ana’s have been check and are negative.

Today my husband and I argued that me crying and laying around isn’t solving anything, I explained that I don’t know what else to do and he doesn’t understand. I get that it is hard on my family too, but as I’ve learned over the years with disease that they can’t physically see the damage, unless of coarse I’m having a bell’s palsy episode which is quite frequent in my world…. Neurologist rights it off as very rare and I should take steroids to help.

See fellow gravian’s here is yet another lost in the land of Thyroid….. I would really like to just feel like Di again some day….. People in my life have such a hard time understanding me anymore, I used to be able to handle life and a full life, I raised my two boys for 7 years on my own, worked full time, school part time, two boys in hockey, volunteered for 10 years, now days it feels like a feat to work and keep my house!!! Within the last 3yrs my oldest has been dx with crohn’s and youngest has been allergic to the outside world (everything outside) so asthma and severe skin problems since birth.

Although undx at the time, I believe grave’s was involved back then, I miscarried twice before my first and twice before the second, as well as both both boys having autoimmune issues….

I usally manage these episodes a little better then this time, I have so many things on the table to deal with right now, they all require me to fight and stand up for myself….I’m not feelin it, my fight is gone, my drive is empty I recently in the last 2 yrs had to change careers, I am now working less physical work but I am doing 12 hr wake night shifts, 4 on 4 off, really only 2 off cause I can’t move for the first two!!! I have also been helping out the landlords as people are ditching on their rent, so cleaning to make extra money. We need the money, but how do I keep up? Or give up? My body says keep it simple…. my life says step it up lady!?!?!?

Well ladies and gentlemen tonights rant was brought to you by my insomnia, anxiety, hr of 142 and emotions exploding through my eyes that aren’t supposed to cry….Now I will gel them tape the left one shut and hopefully collapse for a nap from running so fast….

Cheers again fellow gravians and thanks for listening

night all
Di

[Naisly]

#1175059

dhuston

Hi there. It sounds like your going through some hard times, and have gone through them. This place is a great place to vent and cry with others who understand and feel your pain, so welcome!

I do have a question – what are you doing for treatment atm? What did you do for treatment in the past?

Sounds like your hyper again…

~Naisy

[Kimberly]

#1175060

Hello and welcome! Hopefully, the docs are doing some thyroid testing in conjunction with the holter monitor testing.

There could be other causes for your symptoms, but with a history of Graves’, it certainly makes sense to rule out whether you are experiencing a hyper episode!

You didn’t mention how you were treated initially, but Graves’ can recur after a round of Anti-Thyroid Drugs (PTU, methimazole, Tapazole, etc.), and it can also potentially recur if there is living tissue remaining after RAI or thyroidectomy.

Hopefully, some answers from your doctors will be forthcoming — so that you can get back on the path to good health. In the meantime, it would certainly be helpful to pare down your day-to-day work and home responsibilities as much as you possibly can. You definitely have a ton on your plate right now.

Take care — and keep us posted!

[dhuston]

#1175061

Thanks ladies for the welcome!!

I have been on tapazole (5-10mg a day) small dose, but have not been on it since spring, so this episode may have been brewing for awhile.

I did have a message from my doc’s office today that he would like me to be there at 9am tomorrow, so hopefully this will get somewhere, he should have my new lab results and maybe the holter results as well, not sure how long they take.

Today is a bit better pulse is about 110, i know not great but much easier to bear then 140-155 range!!!

I thank you again and am so glad I stumbled on this forum, support is awesome!!!

Cheers
Di

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