[cathycnm]

#1069790

Hey MB – I might be able to help out. What sort of info are you looking for??? There is some info at the National Institute of Diabetes and Digestive and Kidney diseases – perhaps you could google them and see if that is helpful.

I hope it is not you with that going on. :” title=”Question” />

[mamabear]

#1019170

I know there are some great people on here that might be able to lead me onto the track. I need help with finding a forum OR a GOOD site for information related to Ulcerative Colitis.

Thank you
MB

[mamabear]

#1069791

No i am not the one with it.
My mother was diagnosed last year with Crohn’s disease, it almost killed her at age 53. Got a call from dad(who I rarely speak to) and almost had an accident in my pants when I got that call. Well she had to have surgery and long story short she is in surgical remission ever since. She’s in ME, she sees a specialist in ME but also sees a really good specialist in Massachusetts.

My husbands 1st cousin has Ulcerative Colitis. He also goes on internet and researches like I do but I finally got an answer yesterday as to what exactly he has which is the UC. I know it is an Autoimmune disease and it is Irital Bowel Disease. I know that Crohn’s and UC are similar but some say it’s the same. I don’t think it is the same thing, I think they are classified as two separate IBD’s. But I could be wrong.

My DH’s aunt said that the dr’s say he got the Autoimmune disease from her side of the family but they can’t figure out from who. I am not sure who they came about that conclusion since no one has had any testing at all genetically to see if there were any genetic factors to say who it came from. Not that there are such tests but no one has had any blood work done at all. Cousin is very ill again and has lost most of his colon so far. He is very young, not even 30 yet and has been dealing with this for several years now.

I will google what you posted.

Thank you all

Oh just FYI, mom is still in surgical remission and doing well. She has Crohn’s and is Hypothyroid at this point in her life. She wanted to know if there was a test to find out if she had Graves’ disease when she was younger and it died out and now she is hypo but I told her I didn’t think there was a way to find out. She didn’t have tests done back then either. Her history does give us clues, she was always "not there" or "our of her mind" in a sense so that is all we have to go on. I know for sure that she had Crohn’s her whole life because she said she suffered so much with issues like that but it was never bad enough to seek help. OMG that woman never saw a dang dr. Thank GOd she does now.

[cathycnm]

#1069792

Good luck with your search. They are different. Crone disease can occure anyplace in the GI tract, UC occurs in the colon only. I wish your kin well on this journey!

[mamabear]

#1069793

Thank you. That site was great. I spoke with mom and she said her dr. in Mass. recommends that site as well and I found a foundation as well that deals with Crohn’s and UC. Wow!!

Thank you so much!

[cathycnm]

#1069794

Yea!!! I wish both of you the best on your journey with this. GI stuff is so disabling – I worked with a social worker who had Crohn’s and she really always had to have a back up in-case this reared up. She did great with it – and I think she also had incredible strength.

[RhondaG4]

#1069795

Mamabear,
From what I understand the antibodies for Graves…even if it was years ago, are always with us. I know when they did my test from Mayo in Minn, they consider anything over 16 positive for GD. Mine was only 19. She should ask her doc if he will do the GD antibodies test. I could be wrong about this, maybe Ski might have a better answer for you.

Also, doctorslounge.com is a really good site. You can ask questions and medical professionals answer them. They have all kinds of catagories. Hope this helps. Rhonda

[mamabear]

#1069796

excellent Idea. she is due for new bloods but not sure when so when i talk to her i’ll tell her. I didn’t even think about that!!!!!!!!!! AWESOME

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