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  • Anonymous
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    Post count: 93172

    Well the first thing I can tell you is NOT to be nervous. I worried myself sick over it and it’s not that big a deal. All you do (well all they had me do) is go in this room and drink some clear liquid out of a jar. As far as how I felt after I drank it, I was fine until I went hypothyroid. They have had a hard time finding the dose of synthroid that will keep my level where it should be. I was told when I had RAI treatment that most people respond within 3 months and if they go hypo from it, which think most do, then they should be back at normal levels within 6 months of RAI. As for me it’s been 3 years. But think most people are back to normal after 6 months or before. Good Luck and DON’T WORRY!

    Anonymous
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    Post count: 93172

    I am getting a dose of radio-active iodine on Monday and I am kind of nervous. Please let me know if you’ve gone through this and how it went, how you felt and how are you now? Thanks. Anita

    Anonymous
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    Post count: 93172

    Hi Anita, From my experience there is nothing to worry about. I continued working, didn’t feel any side effects and didn’t notice any changes until about a year later when my eyes started to bother me. And DON’T fret that the eye thing will happen to you. It certainly does not happen to everyone. I had been hyper 10 years prior, taken medication for two years, had an eyelid done and went into remission for about eight years. In my case the RAI may have brought back my eye symptoms, however, I know a lot of people who have had RAI and take their medication when they start to go hypo and have NO further problems. Hopefully that will be the case for you. Good luck. SAS

    Anonymous
    Participant
    Post count: 93172

    Hi,

    There is nothing to worry about, really. I know there are a lot of scare stories around about it, but in my experience they are very much exaggerated. I had my RAI a year and a half ago, and I am feeling great. It took a while for us to get me balanced out on replacement hormone, but even during that time I felt MUCH better than I had either while hyper or on antithyroid meds. I hope that holds true for you, too.

    One thing you should know: one of the temporary side effects that you could have is to be more hyper than ever about a week after the RAI. This only lasted a couple of days with me, and my doctor had prepared me for it — both psychologically and with instructions for medicine to take to alleviate the symptoms. If you don’t know about it, though, it can make you think something is wrong. If your doctor hasn’t mentioned it (or did and you forgot) you might want to go over with him/her what it’s ok for you to do to help yourself through it.

    I wish you VERY good luck, and good health very soon.

    Bobbi — Bobbi1436@AOL.com

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