[DianneW]

#1072121

That does indeed sound traumatic! When did this happen–is this just recent? Have you made a decision on how to treat your hyperthyroidism? How about your eyes, are they affected?

I’ve known others who have been through what you have and now have normal heart function. I hope yours also is able to fully recover. Talk with your doctor about that possibility. The most important thing now of course is to keep your thyroid levels down so that can’t happen again, and so your body can heal.

Please keep us informed on how you are doing. We’re here to help!

[billyb]

#1019509

My graves story is unique and complicated from what I’ve researched so far, I was diagnosed with graves after having a thyroid storm at the age of 25.It was undiagnosed since childhood.Along with the storm,I had atrial fibrillation which is an abnormal heart beat.one day I’m at home on the couch watching the game before work and I start to feel a pain in my chest,a sharp pain that I’ve never felt before and my heart was racing like it was going to beat out of my chest,I thought i was having a heart attack,my grandmother takes me to the ER were they hurry me back and run my vitals my hr was at about 150 to 160 bpm, blood pressure was off the charts,the nurse thought I was having an overdose and she thought I was lying to her when told her I hadn’t taken any drugs,it wasn’t until the blood work came back that they realized I was having a thyroid storm,but at that point the main concern was getting my heart down and correcting the fibrillation. The doctors decided that the best course of action was to do a cardiac aversion they tried 3 times and were unsuccessful.They admitted, me to the ICU and started me on a regimen of drugs, hardcore meds a normal 25 year male should not be taking,meds for the heart, hbp,morphine because the aversion is very painful ,they shock your heart to stop it momentarily and when it starts it should be on its normal rhythm.the power of the shock was enough to tear tiny ventricles on my heart.I was a mess, a few hours prior I was relaxing at home and now I’m in the intensive care unit with IVs in both arms, heart monitors, I’m on tons of drugs, I just experienced one of the most traumatic events of my life and now the doctors are telling me my heart is defective,I have hyperthyroidism,oh and graves disease…

[hyperm]

#1072122

Billyb,

I can completely sympathise. I was diagnosed 4 years ago and then with my last pregnancy everything was very calm then afterwards I started to feel unwell very quickly. My GP said her heart stopped when she seen my results as they had went off the scale – however on the Friday I had to go to a&e as i had tachycardia they let me home and on the Sunday I collapsed after feeling the worse palpitations of my life – like you said as though your heart was going to burst through the sternum. I was very afraid as I had a feeling it was a thryoid storm and like you they thought they were going to have to shock my heart and my blood pressure was VERY low as though I was internally bleeding. I am a health professional so was really in a panic when I heard what was going on! I then was allowed after much persuassion to use a commoded at the side of the bed – the next minute all my machines and ECG’s the lot started to beep alerts and I had telemetry on etc.. the next thing I knew I was being lifted into the bed and I heard them calling for someone to contact my husband – then I went out again. I came around with machines everywhere and I what I knew to be the "crash team" resus team around me.

Its a very traumatic experience and I can completely appreciate how you feel. I went into AF too and its horrible. To be honest with you I have lost all my confidence and don’t want to go out incase I take a palptiation. My heartbeat in the ambulance was 166 and rising in the hospital it was over 200 but they couldn’t give me beta blockers because I am chronic asthmatic. The ECG stickers etc… kept sliding off as I was sweating so much etc…

If you need to chat then don’t hesitate – its a very traumatic experience and I know I have some form of post traumatic shock syndrome as I have flash backs and can’t watch any medical programmes as it really frightens me! I have 2 little boys and am frightened to be left alone in the house- I take my phone even to the toilet with me ” title=”Wink” />

Hang in there! Once they get your levels sorted you WIll start to feel better. I am happy I am having my thyroid removed as I NEVER want that to happen to me again!

Take lots of care and give yourself time at least now you know what it is and they can do so much with thyroid treatments…You have survived the worst possible situation! ” title=”Wink” />

M x

[billyb]

#1072123

I just typed my whole story and lost it. But yeah it was quit the experience I remained calm through the whole ordeal or as calm as you could be with your heart racing at 160 bpm. I had my grandmother with me,and I had to put all my trust Gods hands and in the hands of those people who were there to help me. For a brief moment the thought of death entered my mind when I was Lying alone in the ER waiting for them to do the procedure,and then I felt a calming energy and I knew I was going o.k.but I was still scared as hell.3 tries didn’t work during the last aversion I was coming out of anesthesia and I remember feeling the power of the electricity. What do you know of graves being psychosomatic disease? when I entered psychosomatic in the advanced search on this web site it wasn’t in any post which surprised me because that’s how I developed it. basically psychology manifesting itself physically.

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