[hyperm]

#1072746

Hey I’m from the Uk too and I know what you mean regarding referral systems etc… however you ARE allowed to ask for a second opinion – I am a health professional and I know the ins and outs and you can ask to be seen by another consultant. The problem in the UK is that patients often feel that the power lies with the consultant – however, if you were to ask for a second opinion etc…. you will soon find that the power lies with you.

I challenged the endo I used to attend and worked with – one appointment he just wanted to ask why we refuse his referrals for rehab etc… I Was fuming as I feeling crap and he wasn’t interested. One day I just burst into tears as I was exhausted and he gave me a 5 min appointment and said right all is well and I just said "hold it" and then he put the onus on to me by saying "well you deal with it more than i do in your professsion so I think that we both know we are dealing with chronic fatigue here" and said go and get a 2 week sick line from your GP. When I changed endo’s and my current one (who is fantastic) told me I had been on the wrong med I was furious! I had been made to feel neurotic and as though I was lying about my diet etc…

So yes I would def recommend you question it and don’t mind at all you mentioning my case.

Hope all goes well.

mxx

[mamabear]

#1072747

JUST SENDING THIS TO YOUR DAUGHTER AND YOU. HOPING IT MAKES HER FEEL BETTER.

[catsmum]

#1072748

Thanks girls!

Mammabear – The bears made me smile, I don’t think I’ve done that for a while – thank you x

Hyperm,
I’ve tried looking into why block & replace isn’t recommended for menstruating women but can’t find out. Do you know if it is to do with decreasing fertility or osteoperosis or something specific like that. We’ve just found out Cat’s next appointment is with a different doctor, not the consultant or registrar she has already seen. Maybe he will be more clued up on Graves. As she’s been complaining of dry, gritty eye & her eyes are tearing a lot I thought I’d ask for a referral to an opthamologist too.
I’ve been trying to find doctors / endos in our area who specialise in Graves but can’t find anything. If anyone can recommend someone in North East England I’d be really grateful.
Currently Cat is sleeping all the time & finding it so hard to study (she begins her A levels on 6th May!), poor kid is having a tough time. School have said she can take breaks during the exams but I’m concerned that her inability to focus on coursework & revision is really going to affect her grades. Seems so unfair for her to have all of this right now. Not sure how we’d cope without all the suport from the guys on this forum.
Oh well, on with another day ” title=”Neutral” />

[hyperm]

#1072749

Hey,

I’m not sure and was so shocked and to be honest concerned about my baby that I never asked why. I’ll ask my BIL.

I had teary / gritty eyes for a while but it did settle down. Its such a shame for your daughter as being a teenager its not easy staying awake and the GD just makes you feel even worse.

Could you not ask for a GP cert to be attached to her file for the markers who score her results? My parents arranged that for my sis- I am sure you mentioned you were a teacher so probably know more about it than me. ” title=”Smile” />

Hope today proves to be a good one – I’m off to feed an almost 4 year old who won’t stop eating!!!!!

[catsmum]

#1072750

Hi Again,

The exam officer at school has been in touch with the exam board when Cat was first diagnosed & arranged breaks during the exam for her but I jusr feel that she’s gone through so much during this final a-level year with firstly being very hyper then the effects of the meds, now she’s hypo this has had a detrimental effect on her course work & revision. I’ll call the school next week once they are back from the Easter break & speak to them again.
Off to wake her up now & see if she can manage an hour or so on her coursework.

Take care,
W x

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