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  • LillyL
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    Post count: 25

    Hi all, I thank you all for posting and I am just learnign so much from this site and trying to ask the right qestions so here goes. I have been diagnosed with maybe Lupas and my mother had it Diagneses with Menieres diseas, Sjorgrens Syndrome , Ostioarthritis, PCOS many years agao at 18 and now at 50 Graves disease. Well all of the others I have been diagnosed with I have gone into reimssion from time to time and I have always turned down the radical surgerys for treatmens when offerd and I think I will probly go into remission from Graved disease too if I just wait long enough. What are your thoughts. You know there really isn’t anything wong with my Thyroid gland it is my immune system thatn is attacking it. I told this to my GP today looking for support on alernative treatments to RAI or Thyroidectomy and she got mad and rollled her eyes and told me that my Endo was the best and to listen to him because I can’t stay Hyper. But isn’t it true after iether of the more radical traatmets I mentions earlier I will then be Hypo and hacve to take those meds. man am I oxnfused and scared. Wow I sue wish I knew what to do. Any help or information in the Victoria BC area or Vancoiuver Island Area or Vancouver area I would appreciate it so much. thanks all and take care of your selves now :)LillyL

    Bobbi
    Participant
    Post count: 1324

    I would ask you to think about a few questions here, Lily. I am assuming that because of your other autoimmune issues, that the antithyroid drugs are not recommended. I could be wrong about that, but if that is the case, and you’ve been told your “best” medical option is to remove your thyroid, here are some thoughts.

    It does not matter what is causing a diseased body part — antibodies or bacteria or viral agents can cause disease in a body part. Sometimes that disease agent can be stopped with antibiotics or the body’s own immune system, but sometimes it cannot. To use your logic: In appendicitis, the appendix isn’t at fault, bacteria is growing in it. Why remove it?. If you had gangrene in your feet, due to diabetes or something, it is n’t the foot that is diseased, according to your logic, it is the gangrene. So, why remove the foot? According to my logic: We remove body parts that are not essential if that is the best way to get well again, and nothing else will work, or work as well. The thyroid performs an important function, yes. But many people THRIVE through their lives without a thyroid. Talk to a thyroid cancer patient and ask them if they regret removing their thyroid? We are blessed with a replacement hormone that works well, so removing the thyroid is a very viable option.

    You could become an invalid, or die, if you do not treat your hyperthyroidism effectively. There are NO alternative treatments that work to control our thyroid hormone levels. You cannot “wait” for remission, because every day that you wait you are losing muscle and losing bone. Your heart action can go haywire without warning, when you are hyperthyroid. It is significantly more dangerous to wait for remission when you are hyperthyroid than it is to wait for remission when you have lupus, or RA, or many other autoimmune problems. A wonky thyroid can be lethal.

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