[Ewenme]

#1018499

My Mom was able to get in to an endocrinologist yesterday (amazingly). She called her GP’s office and asked them to refer her to someone. Her endocrinologist drew some blood samples and called back today and told her to stop taking the synthoid until this Sunday (which would be 3 days from now), then reduce the dose from 200 to 175. So she WAS on too high a dose, but not as much as I suspected. Hopefully this will make a difference in how she feels, and if not, a cariologist may be the next step.
I had mentioned how I have to be careful not to ‘step on toes’ since I don’t live near my Mom or the family members who care for her routinely, but they were ok with this. The night before her appointment, I called and talked to my brother (who took her to the appointment) about my concerns, since he is not that familiar with Graves/how too much thyroid affects the body.
So it all worked out fine, and I feel we are step closer to finding out how we can get to the bottom of my Mom’s problem.

[mamabear]

#1065302

Great job on your part and your db’s part !
Remind your brother that you aren’t stepping on his toes, you are only trying to strengthen HIS support system by helping him out.

Since you know about Hypo/Hyper and isn’t familiar with it you can only pass on good things to him so help him be able to support your mom.

Looking at that way he shouldn’t find it at all that you are stepping on toes. Always remind him that you want to be his support system because it can’t be easy to care for her and since you aren’t there you want to help the best way you can and that would be with the knowledge you have and the knowledge that you can get for her thyroid issues.

Team work!!!! Besides he might send kisses over the phone if this helps your mom’s mood. He might be dealing with issues of ups and downs with her and that isn’t easy to deal with either when you are caring for someone you love so much. To watch it happen and not know what it is from is so hard.

Great job advocating, keep up the good work!

[Ewenme]

#1065303

Thanks for your kind words. My Mom can be difficult sometimes–she’s not a compliant patient, and if she doesn’t like the way a certain drug her doctor prescribed makes her feel, she refuses to take it. When I’m 89 perhaps I’ll be the same way.
My db and other family members (I acutally have 3 db’s over there, two of whom (with their wives) take good care of Mom and are very patient with her, and one who is too busy with some serious problems of his own.
Sadly, I think most people in the family do not know or understand about the connection between Graves and erratic emotions and behavior sometimes, so she has been judged unfairly at times. Even though Mom has had Graves since ’94, our family knows little about it. You can bet I will be using every opportunity to fill them in now that I have it (hopefully I won’t be too obnoxious).
Gotta run–thanks again.

[Author]

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