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  • Kimberly
    Keymaster
    Post count: 4296

    Hello and welcome (and thanks for the kind words)! A couple of resources:

    * You can check out the very first “sticky” post at the very top of the forum for some personal experiences: https://gdatf.org/forum/topic/44273/

    * The GDATF just did a webinar last February on long-term use of antithyroid medications: https://www.youtube.com/watch?v=WJjSzjFyNU4&t=78s

    Even if remission isn’t in the cards, some patients do well taking antithyroid drugs over a period of years – *if* their thyroid levels can be well controlled on a lower dose *and* if they are not experiencing side effects. Ultimately, it’s up to you and your doctor to weigh the risks and benefits of all three treatment options (meds, surgery, RAI).

    Take care!

    terppsi
    Participant
    Post count: 24

    Hi Conky,

    I have been on methimazole long term. I was diagnosed in 2013 and in 2019 my trabs was finally negative though I still had anti thyroid antibodies.
    So my doctor was weaning off the methimazole. Last year I started to forget taking the pills and since I was feeling alright I just went off them.
    I just had bloodwork done 2 days ago and that included the Trabs and the antibody count so let’s see what comes up.
    My endo said that sometimes you can go hypo after a long period of treatment.

    Good Luck!

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