Hello,
I was diagnosed with Graves’ in December 2024. I was put on Methimazole (only 5mg daily) and everything started to resolve nicely with my symptoms almost completely gone for about 4 months. I have been having a mild relapse in the past few weeks. My eyes have been affected in the last few months as well (they feel gritty and tired 24/7 but are not bulging and the eye doctor said it is Heavy Eyelid Syndrome, likely not TED).
The only thing in my monthly lab work that has been going in the wrong direction is my Alkaline Phosphatase which has been steadily increasing. I had lab work done in 2023 which gave us a good baseline showing the ALP was within the normal range until I was started on the Methimazole so we know it is the med, not the disease.
I haven’t seen an endocrinologist yet as waiting lists in Canada are long but my GP tells me the only options are RAI or surgery. I would welcome people’s experiences with either since it looks like methimazole may be out as the treatment choice soon. Thanks!
