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#1060084

This gets complicated, but i’ll try to keep it simple. I’ve been on Meth for the last 11 month or so at one dose or another. My previous endo also had me on Levothyroxine and T3 (block and replace) for part of that time.

Since I started Meth I’ve had bad body aches and on 3 separate occasions when the dose was lowered, my back went into severe spasms for 7-10 days and then it would go away, but the general fatigue and body aches would return.

My new (and 3rd) endo refused to do block and replace and a little over a week ago, had me stop all thyroid drugs immediately in order to get a new baseline. I will be tested again in 2 weeks to check levels. Within two days, my back went into severe spasms which lasted for 7 days. Today is day 9 since I stopped all thyroid meds and the first day since the spasms stopped. And I feel better then I have during any of the treatment.

So this leads me to believe that while Meth lowers my thyroid hormones sufficiently, it is also making me sick and causing a lot of physical pain. I’m wondering what it’s doing that’s causing my back to spasm when I lower it. I’ve never had lower back pain for no reason. But since starting treatment it has been really severe when they change dosages. I’ve come to believe that something in meth or in something meth is doing is causing inflammation in my body, specifically my back and joints.

I come to this conclusion because now that I’m off the meds, even for only a week, my body, not just my back, has stopped hurting for the first time since it started when I started the thyroid drugs.

So one question is what do I do, if my levels change and I go hyper again? Has anyone else experience this? My blood tests come back normal so Meth isn’t “toxic”to me, but can the side effects be this severe? Any input is greatly appreciated.

Thankyou!

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[Kimberly]

#1180208

Hello – Joint pain is one of the more common side effects of Methimazole, but I’ve not heard of muscle spasms. Hopefully, you will get some additional responses here.

If your hyperthyroidism does indeed recur, next steps would need to be discussed with your doctor – giving the Methimazole another try to see if the spasms recur, switching to PTU (which has a higher risk of liver issues, but some of our posters here have used it successfully), or looking to RAI or surgery for a “definitive” treatment. Since the block & replace protocol requires a higher dose of anti-thyroid drugs, it’s possible that a lower dose might not produce the same side effects, but again, this is a decision that needs to be made in conjunction with your doctor.

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