[sjhunter]

#1059095

Hi,
I’ve had hyperthyroidism (G.D) for over 5 years, was on Carbimazole in the UK (had no issues with the meds.)
Then I was put on PTU in the USA so we could try for a baby (had no issues with the meds).
Felt great on both meds all these years & had no issues, until last week – my bloodwork showed v low white blood cell counts & my doc stopped PTU immediately. Which I thought was dangerous, to leave me unmedicated??
Within a day, all my symptoms are back (heart skipping beats, feeling faint/weak, hot flushes at night, insomnia, muscle cramps) & my left eye is puffy.
Does anyone know if I can restart meds once/if my white blood cells recover, or do I now HAVE to do surgery or RAI? Maybe I can take a different med? I feel awful without my meds & just need to take them again!
I’ve been to about 4 different endos in the USA, trying a new one every year, searching for alternative, less drastic solutions.
Endo can’t see me for another week – I feel awful & scared, am taking time off work & I’m worried how bad my eye will get in this time… My eye went back to normal while I was on meds
Has anyone else had this happen to them & what did you do? Thank you.

[Bobbi]

#1172101

No, the protocol when the white cell count goes very low is to stop the meds. The WBC situation usually goes back to normal once the drug is stopped. I do not believe our doctors like to try the drug again, once it has proven dangerous this way. PTU is also known for being more dangerous to your liver. And you need both healthy white cell counts and a liver to be healthy.

The ONLY treatments that work to control your hyperthyroidism are the meds — which your doctor may not wish to try again — and removal of the thyroid followed by taking replacement hormone. Lots of us live healthy, happy lives without thyroids.

[Author]

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