[tmproctor]

#1067091

I am new to the group, I just read this post and had to reply.

I was diagnosed with GD in Sept. 2008. I’ve taken Methimazole since without any success in achieving normal levels, always way to low or to high. I have gone from three times the normal to almost nothing. It literally feels like a train wreck!! I have forgotten what normal is. My uptake scan was 86%. Hot, trembles, big goiter, heart rate at its highest was in the 120s, difficulty breathing, are just a few of the symptoms I was dealing with.

Loud noises drive me crazy now, which is bad because I have three children. I find myself so moody, so uptight now, I feel like I am out of control, I don’t mean to be, I feel just plain mean right now. I don’t know what to tell you about your hubby; abuse is going to far- but if he feels like I do, I know he does not mean to be the way he is to you.

I really hope my family understands that I don’t mean to be this bad person that I am right now, I am just going through something. I know this is not who I am and I hope they know it too!!

I am going in the morning to see the Radiologist to get the Radioactive iodine treatment ordered. I have now idea what happens from there or if it will work but at this point, I am desperate to be normal. Good luck to you and your husband

[hyperk]

#1067092

Hi,
I had a similar experience trying to get stablized with Methimazole after my Feb. 2007 diagnosis. I would go either hypo or hyper with very small changes in the dosing. After 14 months of hit and miss, I was put on block and replace therapy (both Methimazole and Levothyroxine), and in 6 months my blood levels stablized and stayed stable without further dose manipulation until now. I’ve just been taken off the meds and hope for a period of sustained remission. You and your MD may want to consider this as a treatment option.

[tmproctor]

#1067093

Took RAI today. Radiologist said that it usually takes two doses with such a high uptake. I hope it takes, keeping my fingers crossed. Said I had to go back 6 months later if I need a new dose. I am just ready to be done with all this mess. No one offered me to take both the methimezole and synthroid… I would have tried anything not to have to put this in my body. And yes, little changes would change my blood work a lot. Did you or do you also have the extreme mood changes?? What can I do for them, if anything? What works for you?

[Ski]

#1067094

The mood changes are classic Graves’ ~ it has to do with the hyperthyroidism, and as that abates, you’ll notice the mood changes get less severe, and finally stop. One thing that helped me was to make sure that I took care of ME, because when I felt as if I was getting enough rest, doing the kinds of things I wanted to do, and taking good care of my soul (laughing a lot, looking at beautiful things, doing soothing activities), the mood swings wouldn’t be so bad, I could let more things roll off my back. That’s not to say I didn’t snap occasionally, over what I would have first thought to be something VERY minor. In those moments it can help to take a step back ~ give yourself a time out, and take a look at what’s really going on. It’s not that NOTHING can upset us, but we sometimes need to check ourselves and make sure we’re not blowing things out of proportion.

Here’s one thing to remember about them though ~ I’ve found that most of us have been somewhat non-confrontational people prior to our diagnosis, and having the extreme mood changes has led to certain … episodes, let’s say, where we’ve FINALLY "broken through" and spoken our mind, and the world has not ended. These particular episodes may lead to more, similar episodes, even after your mood swings are corrected, which would be more correctly attributed to the fact that we’ve learned we CAN do those things safely, rather than to say that the "condition" persists, if you know what I mean.

Just do all you can to keep yourself balanced, emotionally, and I think you’ll notice improvement. SMALL improvements to be sure, and it doesn’t happen all at once, but knowing what’s going on, and NOT BLAMING YOURSELF, is important.

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