[Kimberly]

#1064392

Actually, I have read about decreased libido occurring with both hypER *and* hypO. As with so many other physical and emotional functions, it seems that the trick is to get our levels "just right". Hopefully, you will get some additional feedback. Although since we have posters here of all ages, PM will be the most appropriate vehicle for more…um…"detailed" responses. ” title=”Very Happy” />

[mamabear]

#1064393

I have NO problem posting so all can see. I think it is important that all see, in case there are others that "search" for the info as well.

I was 26 when FINALLY diagnosed with Graves. I had been going through stuff prior to that and libido was surely one of them. I felt lazy with house work and I felt no desire at all to be "cute" or anything with my husband. I remember him asking me and I said I had no clue what was wrong with me and he said well go to the dr. and find out. He wasn’t’ a dr. so he had no clue! LOL
I didn’t even go then, I waited and waited and finally went due to feeling my pulse so high at night and boom there ya have it.

After going on meds I felt better thus the levels were better and I was myself again. ALSO not able to get pregnant while Graves was active, on meds it was better and was able to have 3 children(03′, 04′, 06′), I did have my 1st in 95′.

I feel that being hyperT and hypoT BOTH make your libido cooky. I don’t think it’s a matter of your libido going to pot after you have RAI or surgery, I think it’s more like, your libido isn’t working right because your levels aren’t right after either of those. I think it’s a matter of if you have either done, you have to get your levels correct before you start to see results in your libido.

I went on PTU to regulate my TSH and was successful in that, went off the meds and have been fine. BUT when I was "low" and Hyper every time my libido was very poor.

Manage the levels right and you should be good.

[genuinruby]

#1018382

In searching user’s post and other boards here on the web, I can only find negative comments about the effect of treatment for grave’s disease has on a person’s libido….is a lowered libido something I have to look forward to after sugery??? ” title=”Confused” />

pm’s are fine….I would really like to know, thanks in advance.

Ruby in Reno

[bluewave]

#1064394

I was dx w/ GD about 7 months ago and have been on ATDs since. My levels have gone from hyper to hypo to hyper again, but I have not noticed a change in libido, other than a lack of it because I felt really sick some days.

I haven’t gotten stable yet, so I’m not sure what will happen, but so far no libido change. I’m male; maybe that makes a difference. And, for some reason, the GD caused some other hormone changes, including a dramatic increase in testosterone for me — dr’s asked if I was taking some — haha, so maybe my case is different.

[genuinruby]

#1064395

Thank you Kimberley and mamabear for being brave and writing a reply. As for you, Bluewave, your comment gives me hope. LOL.

[snelsen]

#1064396

It has been a long time since I was hyper or hypo, but I noticed a decrease in both instances, but i attibuted it to being sleep deprived and generally pissed off at everyone most of the time, including my husband, when I was hyPER, and when i was hyPO, I could barely lift my head off a pillow, felt like a slug, was always cold, and totally disinterested, much more interested in taking another nap!
I think, as it relates to hypo and hyper, it will be temporary. Having said that, there are million other reasons which can contribute to decreased libido, including frantic lives, wrong person, stress about other stuff, and getting older.

Ruby-not related to surgery at all in my experience. I have had many surgical procedures, including thyroidectomy.
Bluewave, I have no idea of the relationships of testosterone and Graves’ sounds like your doc doesn’t either!

[lhc11]

#1064397

This question made me laugh! There is no question that while I was sick I had NO interest in sex, and no question that since I’ve felt better I have felt more…so inclined. ” title=”Wink” /> Of course, we are also trying to conceive, so that complicates knowing what it is exactly that one "wants" at any given moment….

All of which is to say: don’t worry about it.

lhc11

[bluewave]

#1064398

snelsen wrote:…
Bluewave, I have no idea of the relationships of testosterone and Graves’ sounds like your doc doesn’t either!

snelsen: The endo said the hyper state increased the liver’s production of the sex binding globulin hormone (SBGH), which binds to free testosterone, thus lowering the bioavailable testosterone and causing an increase in testosterone production, resulting in high total testosterone — 2500 in my case, which is evidently off the charts. I don’t know how common this is or isn’t w/ GD, but that’s what the endo’s told me, and tests of SBGH, total test and free test were consistent with this.

While the body tried to balance the bioavailable test, I definitely felt the changes, mostly when it made me feel like a teenager again ” title=”Wink” />

[snelsen]

#1064399

Bluewave, maybe a good time to come to Seattle, then climb Mt. Ranier, Tiger mountain and more, with that adolescent energy ” title=”Smile” />
Shirley

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