Viewing 15 posts - 1 through 15 (of 15 total)
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  • mamabear
    Participant
    Post count: 484

    Well it’s been several weeks since I was diagnosed with a kidney stone. I can’t wait any longer. I have to have it out. Not so much from severe pain, the pain is dull and achy. It’s more due to the fact that I don’t feel myself all the time now and after many many months of this I’m done.
    I went to see the chief of urology and he said that my body knew way before I did that there was something wrong and he feels that it can be the cause of many things since this all started last August. yes I said august and yes it hurts. I have no clue how I made this far without going into the er what it’s time now to have it done.
    I am waiting for the dr’s office to call to see when they can get me in. it comes at a time when I already made plans for kids and school and I hate to disappoint them. I don’t know when I can get in but we’ll see. Hoping that after this is all said and done i’m back to my old self. <img decoding=” title=”Smile” />

    snelsen
    Participant
    Post count: 1909

    I know the planning logistics can be a nightmare, but you will feel SOO MUCH BETTER when it is all gone!!!!
    shirley

    Bobbi
    Participant
    Post count: 1324

    I’ve not had kidney stones, but my husband has. The problem is that you NEED your kidneys to be healthy, and stones can stress the kidney. My husband nearly lost one of his kidney’s due to stones. So you really shouldn’t put off taking care of it. I know you don’t want to add this to your "menu," but you really do need to take care of yourself. Oh, yes, and little to no pain is not necessarily a sign that all is well — or, even, not too bad.

    Kimberly
    Keymaster
    Post count: 4294

    Oh, no! I’m so sorry to hear this. You always seem to deal with life’s challenges with common sense, determination, and a sense of humor…so I know you will get through this and get yourself back to 100%.

    Take care!

    mamabear
    Participant
    Post count: 484
    You always seem to deal with life’s challenges with common sense, determination, and a sense of humor…

    Thank you! Yes I do and I will but this has kicked my butt severely and I have to say that Bobbi certainly has a point. This pain had drained the life out of me and I can’t continue to let it keep me down!!!!

    I’m all ready to go! I don’t want a loose a kidney over this nonsense! Besides my dr thinks this is their weirdest case he’s ever had!!!!

    Friday it is and dh and I have made plans, and I spoke to ds7 about not going to his poem reading and party but I will buy him a camera and he can take pics for me. He loves to take pictures!

    I feel fine about going into surgery, I just feel tired and icky in general so can’t be my chipper self since I not feeling good!! LOL

    Dr. is doing blood work tomorrow on me including Thyroid levels just to have a base line before I go in to see if this surgery kicks me out of remission at least he’ll have a base. I haven’t had them done since october so he wants fresh ones.

    Bobbi
    Participant
    Post count: 1324

    Good luck. I hope you are feeling much b etter soon.

    mamabear
    Participant
    Post count: 484

    Thank you! I need all the encouragement I can get.
    Went to drop off stuff with dr.’s office. all ins. needs are done.
    Dr. looked at me and said "when was the last time you had…. oh never mind, we’ll draw blood just in case and I’ll make sure i do a cbc and glucose as well as the thyroid just in case." I then said well since you were going to ask, it was Oct. 09′ like I said before.

    He was concerned that dd3 would not like the needle and was kind enough to ask me about it. I said no she thinks it’s awesome that mommy gets blood drawn. He was like "i guess that is ok", I had to tell him that they all feel that way because I make it a happy thing not a omg thing. He then relaxed and I guess he felt better thinking my daughter wasn’t a little goulie or something.

    I then told him while he was working on my arm, "it isn’t often you get a dr. who draws blood", He said well I had a job doing this for the summer many years ago so I learned. I laughed and said "well you learned correctly and I think that should be a course all dr’s take and told him he did a great job himself at drawing my blood". He said thanks!

    He really did a nice job, I have to say! They really should make all dr’s do this as a summer thing!

    Can’t wait for this to happen, I’m so ready for this thing to be out. I am really getting excited about it and only wish I could watch the actual surgery !!! LOL

    mamabear
    Participant
    Post count: 484

    Surgery done. recovery slower and more painful than I expected but hey it’s out! will post soon

    Kimberly
    Keymaster
    Post count: 4294
    mamabear wrote:Surgery done. recovery slower and more painful than I expected but hey it’s out! will post soon

    {{{Hugs}}} to you. I’m glad to hear that the procedure is over and done with! Best wishes as you go through the healing process.

    mamabear
    Participant
    Post count: 484

    I just wanted to post and say that I had a kidney infection that didn’t start till 6 days post op. It has been quite a week here, scary but the worst is over and I am grateful that I have great general dr’s who caught it.

    The stone analysis came back and it shows the type of stone and I might have to have my parathyroid checked. I am looking for a new Endo. I am not sure if you remember but I stopped seeing one after the fiasco with the last endo that said oh your levels are fine (they were slightly off but in range) and they treated me poorly. Remember that I don’t give 2nd chances. I have learned that is not the way to go. If you make me feel like you are ignoring me I will not go back. To me a poor diagnosis can be forgiven.. I mean we are only human. But to blow off how a person feels, is unforgivable in my book.
    I do have a few more choices with endo’s this time around. So when the urologist says tomorrow you will have to see one at least I know i wont be going to the same ones I have already been to.

    I have to take it slowly, no lifting or too much of anything. I am in good hands and am almost finished with my antibiotics. I must say I was scared with this one.

    Going to research a bit on hyperparathyroidism and see what I find, just thought I’d update you all.

    Kimberly
    Keymaster
    Post count: 4294

    UGH, sorry for the extra complications. <img decoding=” title=”Sad” /> Take care of yourself, continue to take things slowly, and definitely keep us posted! Sending {{{hugs}}} your way!

    snelsen
    Participant
    Post count: 1909

    Hi, I am so grateful for you that you have this behind you. It will make a big difference.
    When you are feeling better, all of life will look brighter. It is hard to live with chronic pain.
    Perhaps, now that you are home anyway, it is a good time to make an appointment with an endocrinologist, for it takes a long time to get in, and you may need a referral, depending on your insurance, and the docs.
    My insurance is excellent, a PPO, but for medical specialties, I need to submit my history and labs, dictated reports, including the one from endo you did not like if you are willing to do that, if you don’t want to , the world will not end.

    I am in a different camp than you regarding second chances, I give them freely. Do what works for you, but consider not burning all endo bridges, for it takes a while for them to get to know you, and work with you on a treatment plan. And we need them. There are docs out there who will use their extensive knowledge, which they do have, and combine it with how we feel, and allow for discussion. I am in the middle of that right now. If you read my email sent today, you will see a bit of my story. Unfortunately, it takes so darn much time to have the labs catch up with how we feel, and there are always instances (ME, ME!) when my symptoms are completely contrary to what I "should" be feeling. it is definitely a balancing act, and I am in the middle of it. In my experience, it has always paid off in a positive manner. At different stages of this darn thyroid disease, we have different degrees of patience. I do know that I was not always pleasant and fair when I in the throws of my hyperthyroidism. I felt like I was absolutely LOSING IT and nuts. And I was. NOt fun to have our bodies boss us around.
    The best of the best to you, mamabear!
    shirley

    mamabear
    Participant
    Post count: 484

    Thank you!
    Yes I need to see an endo reagardless of whether this is from parathyroid issues or not. I saw urologist today and it will be a slower recovery than I expected due to this infection. I knew it was bad but I didn’t realize how long it will take to be back to 100%.
    I did make an appt with a new Endocrinologist "just in case" for june. Come to find that he was in a business with the dr. I left a few years ago. They didn’t get along and he is now practicing alone. I laughed with his receptionist and said oh then you ARE the ones I need!

    It is most unfortunate about the other endo’s I have been to. I don’t mind a miss diagnosis or missing something, I do mind a dr. who finds himself so full of himself and misses what I am saying because he couldn’t care less and he only heard half of it and can’t get the whole picture. Just like this Uro (not the new one), he heard me cough and completely missed the rest of the stuff I was saying. That is something I will not tolerate and have never been able to tolerate with an endo. I hate the attitude they give when I use to say I wasn’t doing RAI. I use to hear "what do you mean, it’s the best thing to do for your?" When I would say no they woudl say that I would never be able to achieve remission.
    I am in remission almost 3 years now with out meds. I know I can easily go out of remission again and back on meds or maybe eventually have to have RAI but for now the meds worked for me and I am grateful. Had I listened to the dr’s I don’t know what I would have done and where I would be right now with my levels.

    You are right, different feelings for different dr’s. These dr’s here are to full of themselves. lol I am hoping this new endo I will see will be the one I need, the one I use to have was a great man. He retired so I had to find others that just didn’t match up to his great bedside manner. He was a true old fashioned dr! Few and far between!

    Keep up the great work everyone with all you do to help yourselves and your health. We all deserve to feel good!

    snelsen
    Participant
    Post count: 1909

    Hi!! SO glad I checked in again, caught your post! Good job! I think it is absolutely wonderfully HILARIOUS that you called the other guy, learned why he left! What fun to laugh with the receptionist! And really glad you moved ahead and made the appointment.
    You are doing a great job trying to deal with this crappy disease! ANd you are busy! Four kids! How old are they?
    I have decided you are in the Pacific time zone. Right or wrong?

    I think I have had better doc experiences. I have, on occasion, changed docs, but have never had a real stinker.
    Unfortunately, I have had way way too much experience with health care as a consumer. I think the thyroid issue, and the TED is much, much, more stressful than all the chemo, radiation, etc etc that I had for my (yep!) two breast cancers.
    I am ten years out from the last one, thanks to Herceptin for my HER2NU gene. No family history of either thing, breast or thyroid.
    Time to read (I have good downward vision!) a good book.
    shirley

    mamabear
    Participant
    Post count: 484

    My babies are; boys 15 and 7 the girls are 3 and 5 but going on 4 and 6 very soon! I’m 36 and will be 37 soon as well. I do not have to say to check in with gyn about your b(O)(O)ies to make sure all is ok! I am sure you already know that! Wow you have been down a road or two more than once my dear. God bless your heart ! I’m on the east coast (NJ/NY/PA). The funny thing is is that the dr. I adored here was raised in Maine which I am quite fond of. I find that a good firm hand shake and your word comes from people from maine and texas, you tell a mans life by his hands and his eyes and you can tell a wife by the friends she keeps. I tend to stay away from "friends", I have a best friend outside of family or my husband and she is as true as you can get. not sure I need more than her. I do have several aquantences but most women tend to talk about their hubbies, i don’t. It’s also funny how the east coast is so different depending on what part you go to. yes the dr’s are so different in different areas.
    Have a great weekend, you sure deserve it!

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