[Alyianna]

#1175017

I have never heard anything about taking Ibuprofen (Motrin) with Graves. I know my doctors all know I am popping Ibuprofen like crazy… 800mg at least a couple times per day.

Can someone tell me why this would be a bad thing in conjunction with Graves?

[beach45]

#1175018

WWW12,

Your welcome! As much as I can help with my experience for people like yourself as it is scary in the beginning and then again if a person is faced with a RAI or TT decision. I advise only as an individual who has gone through much with this disease to try your best working with a good doctor to stay on Methimazole and try to go into remission. A lot of doctors push RAI right away or they say some only allow people to try it for max 24 months. Some people have been on lower doses for years.

It is natural to have that fear of the RAI/I-131 before and after. When I look back I think why was I so fearful actually! The one thing that irritated me the most was going too darn hypothyroid just this end of August and more weight gain; I never even spoke of the hair loss as I had it post RAI, then stopped for a few weeks and since being on this Generic Synthroid hair loss again! I’m not going to fret over that though just yet as I have to give things time. I had relief I did RAI in a way because that Methimazole roller coaster was beating the heck out of my body; yet it does not happen that way for everyone!

I know of TSHs that were much higher! I had to laugh 60! I felt lousy at 3.5 one time on Methimazole and the highest drug induced hypo on Methimazole was TSH of 13. I was though somewhat dehydrated and lost some potassium as a result of too hypo this past August yet I’m much better now in that regards! I’m cautious of endocrinologists and thyroid in my experiences; some are very knowledgeable; some have more experience with diabetes. Only from my own experiences and others I know with endos.

If my experiences can help you and others that makes me happy. I know I’m on the road to being possibly back to almost normal again as I have many signs and even with some of the lingering symptoms and issues I speak of, I feel it is not as bad as I thought and in time I believe in the aftermath things will improve and that someday I may not even think about “Graves” anymore! I hope someday maybe I can put it behind me! You’ll do fine; just take it one day at a time!

[Kimberly]

#1175019

@alyianna – I am not familiar with a specific warning on Graves’ and ibuprofen, but here is a link from the National Institutes of Health that states that patients with cardiovascular disease risk factors can potentially be at higher risk for cardiac events while taking ibuprofen. Perhaps this is more of a concern for patients who are hyperthyroid.

(Note on links: if you click directly on the following link, you will need to use your browser’s “back” button to return to the boards after viewing, or you will have to log back in to the forum. As an alternative, you can right-click the link and open it in a new tab or new window).

http://dailymed.nlm.nih.gov/dailymed/archives/fdaDrugInfo.cfm?archiveid=15496

Your doctor or pharmacist could hopefully shed some additional light.

[Alyianna]

#1175020

Thank you Kimberly! That is very interesting and I think I should bring this up with my Endo next visit.

[Alixu5174]

#1175021

Hello All,
I just wanted to address the comments listed above. I was diagnosed with Hyperthyroidism a year ago and have been struggling with my symptoms since before a diagnosis. Two months ago I received the RAI treatments and have since gotten my test results back. It looks as though my levels are changing from being hyper to becoming hypo- in the past week or two my face is swelling, my hands & arms are numb and I can no longer get my wedding ring off and I slept almost all day for three days straight this past weekend. I have no idea if this is normal, because I have always had the Hyper symptoms, which were nothing like this. I also emailed my endo and she has not returned my calls & my family doctor left the practice this week. For those of you who are struggling with Hypothyroidism, have you ever felt this way?

Thank you,
Alicia

[Bobbi]

#1175022

Well, numbness isn’t something I experienced, but the swelling was. I would suggest that you CALL the doctor’s office and explain that you think you need a blood test to see where your levels are. Some of us do start going hypo 8 weeks after RAI, and the sooner you get that stopped, the better.

We do not need to go terribly hypo before our doctor’s will intervene, so don’t panic. The replacement hormone, once it is prescribed, starts to work immediately.

[karengibson5074]

#1175023

Hello, all..

I know this post a a bit old, but was just looking through all the posts and searched for thyrotoxic myopathy and this came up. I was diagnosed with this 04/2013.

WWWI2 (and anyone else with thyrotoxic myopathy):

(1) How are you doing now?

(2) Are you feeling 100 percent better, muscle-wise?

(3) How long did it take to regain muscle strength?

I hope you are doing better by this time. Good luck to all.

[charlene]

#1175024

Thank you for writing!! I too have joint and muscle pain w extreme heaviness at times. I also have had tendonitis im my hands and superficial phlebitis in fingers/hands and bilateral pre tibial myxedema. I’m not sure I can always relate feeling bad to levels.

[flora]

#1175025

Just posting here, in case any subscribers might like to read my post under “Share Your Success Story” – it describes the happy (if very long time happening!) outcome of my Joint/Muscle Pain – Gone! Hope you have found relief from this, too, and are doing well.

flora

[CTquinn]

#1175026

Kimberly wrote:

When you are having symptoms that affect your quality of life, it’s important to keep fighting until someone will help you put all the puzzle pieces together…but it’s also important to keep an open mind along that journey and to leave no stone unturned in exploring *all* of the potential causes.

If you find research from a credible source that seems to fit the symptoms you are having, definitely bring this to your own doctors’ attention.

THIS. THIS is why I am the b**ch mom who always questions every doctor, even getting angry with them. My son can’t fight for himself yet (he turns 6 in 2 weeks), and he’s been complaining about pain since the summer. Why, WHY do i have to fight with the doctors AND the disease AND my tantrum-prone son (which, I know, is just the Graves, not my sweet and loving boy)

I am thankful that my son doesn’t have to advocate AND fight the disease — he’s got built in support with his parents. BUT, it’s hard to advocate when I don’t really know what he’s feeling, and he doesn’t always know how to describe it. Yet i KNOW he’s got joint pain, chest pain, throat pain, headaches, etc….

His quality of life is affected already. I hate this disease.

[CTquinn]

#1175027

What does joint pain feel like exactly? My son has graves, and he’s 6, and I’m sure he has pain. He describes it sometimes very well (“my arm hurts here”) and sometimes very vaguely (“i don’t like how my hip feels”)

I want to know what he’s going thru. I want to know how it feels, so I can help him recognize the signs.

He doesn’t take ibuprofen for pain, but doctor said tylenol was ok. I read about the tonic water. I’m willing to try anything for him.

I’ve never had joint pain, so I don’t understand, but I need to understand in order to take care of him.
The doctor’s last orders were “if he feels any racing heart or pain, let us know.” ummmm… he feels that EVERY DAY! so, should I call them EVERY DAY? …..

So glad to have found this site.

[Author]

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