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I havent had any appointments as yet and my eye is sore and protruding and the whites are covered in red veins and looks unsightly. I do use artificial tears but are my eyes supposed to be like this? My GP isnt an eye doc so I have a few months wait for answers. I am considering steroids through IV if things continue to get bad.., but not sure if the risks are worth it for little or no improvement? The red veins on my eyelids and whites of the eyes are my main issue and i’m staying indoors. The weather also irritates my eyes and theres definitely an increase in eye floaters.
To find out what is causing your problem, you need a doctor’s diagnosis. Sometimes redness, bloodshot-looking eyes, can be caused by something other than thyroid disease. But. If your problem is caused by the autoimmune disorder (TED):
Typically there is a “hot” phase, where symptoms develop over a period of 18 months to 3 years. This is followed by a “cold” phase where the symptoms remit somewhat, and the disease essentially goes dormant. Our doctors typically wait and watch during the hot phase, and are reluctant to intervene unless our optic nerve becomes threatened (pinched) by expanding eye muscles. The reason to watch and wait is due to the fact that the side effects of treatment possibilities (like IV steroids) are significant, and common; and a lot of the time we can avoid those side effects completely, if our vision is not jeapardized. (Because once the hot phase subsides, our symptoms remit somewhat, if not completely.)
Protrusion can be a sign of TED but sometimes we have lid retraction instead. You can sort of tell if there is actual protrusion if you can see the white portion of the eyes underneath the colored portion of the eye. If all you are seeing is white at the top of the colored portion of the eye, it might be that what you are calling protrusion is more precisely “lid retraction.” Lid retraction occurs when we are hyperthyroid, and the muscles of the upper eyelid pull tight. We get an open-wide stare look about us, which, like true protrusion, opens more of the eye to the air and causes it to become more dry. But it is not caused by the expansion of muscles behind the eyeball — it is caused, instead by muscles in the lid of the eyes.
Red veins in the whites of the eyes are not commonly associated with TED to my knowledge. I know folks who have had similar problems who have no TED or thyroid disease, at all. I think it is really important that you get yourself to an opthamologist sooner, rather than later, so that you actually know what is going on. All we can do here is provide guesswork, which isn’t totally helpful. And, if the wait for an opthamologist is “months long” then perhaps you could consult an optometrist in the interim? Some of them are well-enough trained to provide help of a temporary nature.
Hello – It looks like you do have an appointment with an eye doc, but it’s a few months out. (??) If that’s the case, and your schedule is flexible, you can call the doc’s office and ask them to contact you if they have a cancellation. Sometimes this can get you in more quickly. Also, if your GP is willing to go to bat for you, sometimes that can also help cut through long waiting times.
As you mentioned, steroids do have side effects, so this is definitely a decision that you want to make in conjunction with an experienced eye doc.
Take care!
Hi,
yes my doc has sent a letter out to get me a faster appointment i was told today, so will hopefully be seen sooner. I just read an article about TED stating my symptoms and burning sensation:
http://www.roycejohnson.ca/orbital_disease.html
The opticians just assumed its blepharitis, but that doesnt cause protrusion, they arent very knowledgeable and if they arent sure they diagnose you with what they do know. One of my friends was asked if she had double vision (she didnt), so was told she didnt have TED, but not everyone gets double vision so its not as simple as some opticians in the high street think. I dont have lid retraction, just twitching, maybe thats because i am a recent sufferer and its only been a few months. My lids are swollen and this may be the ‘hot phase’.
Red veins can be caused by the dryness caused by TED as it affects the tear film and its quality. I know not everyone gets the same symptoms and or severity. Will be good to see the specialist.
If anyone has good recent experience with TED and its symptoms similar to mine then please feel free to send me a pm. Thanks.
Hi Kells,
I never had double vision, but I was diagnosed with moderate TED in July 2011. You mentioned opticians. I hope you are not going to them for these symptoms…? At the very least, you want to get in to see an ophthalmologist but ideally a neuro-ophthalmologist. My lids were also swollen, and obviously I had protrusion, but they were also extremely red and glazed. My eyeballs actually swelled out the sides in addition to the protrusion. Steroids helped immensely, but you should call and explain that you feel this is the onset of TED. I was able to get in that very same day by “freaking out the receptionist.” Hey, it worked…
gatorgirly wrote:Hi Kells,I never had double vision, but I was diagnosed with moderate TED in July 2011. You mentioned opticians. I hope you are not going to them for these symptoms…? At the very least, you want to get in to see an ophthalmologist but ideally a neuro-ophthalmologist. My lids were also swollen, and obviously I had protrusion, but they were also extremely red and glazed. My eyeballs actually swelled out the sides in addition to the protrusion. Steroids helped immensely, but you should call and explain that you feel this is the onset of TED. I was able to get in that very same day by “freaking out the receptionist.” Hey, it worked…
Haha, I like your style! :0P
Yes I have managed to get an appointment with a TED specialist soon and am using drops until I do. I think a sibling may have the same problem, so I will be dragging them along with me too.
Btw, who are the three hot guys on the cover?
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