[Ski]

#1074097

I don’t think it could be considered life threatening in the classic sense ~ in other words, a child with leukemia would clearly be in a life threatening situation, but a child with Graves’ is USUALLY successfully treated and lives a long, healthy life.

[Madame_X]

#1074098

That has to be rough for a youth.” title=”Sad” />

Is there something he always wanted to do or somewhere he always wanted to go? Maybe you and the family can plan a mini-vacay or maybe he’d like to partake in a new hobby or endeavor?

[amyl]

#1019796

Hi,
As you probably know by know, my son has Grave’s. He’s 16 years old and has been very sick for approximately 3 years. I feel so badly for him and I just want to make him feel better. I started wondering if he would qualify for the Make A Wish Foundation. I looked them up on the internet and they say the qualifications for a Wish are to be a child between the ages of 3 and 18 and have a life threatening illness. I sent them an e-mail and told them about my son and asked if GD was considered life threatening. While I’m waiting to hear from them, I thought I would ask the same question here. Does anybody know the answer?
Thanks!!
Amy

[amyl]

#1074099

Thank you for your notes! I didn’t think it was "life threatening"….just life altering, at least for awhile.
I don’t think he has any place special that he wants to go. I was thinking more of a party idea for him and his friends. When my niece had cancer, her Wish was to have all of her girlfriends go to a salon and have a day of glamour before going to the Prom. She loved that!
Have a nice day!
Amy

[Madame_X]

#1074100

Yah, I was thinking party for the guys, too.

Maybe have them over for pizza and pasta, a bunch of video games or some "boys’ night in" videos and then have the guys sleep over.

[DianneW]

#1074101

It certainly would be nice if he could have something special in the way of a special treat to help him through this illness, even though he’s not in the same category as kids with cancer. I think in many ways, because of the assault GD makes on the emotions, living with Graves’ Disease can be just as rough as living with a really life-threatening illness. Part of the reason is that we don’t look especially sick and yet everything about us, both physically and emotionally, is completely out of whack, and there’s no telling when it might get better. It can feel like forever!

Too bad there isn’t something for kids with chronic illness, rather than just for kids who are probably going to die. I suspect that he may not qualify for Make-a-Wish, but I think that he and many other ill children would benefit from having a resource like that.

This has to be so hard for you as his mom.

[amyl]

#1074102

Dianne,
You are right on target! My son doesn’t look all that sick but he’s a mess internally. There are days when even I question how sick he is….and then I remember that he doesn’t need to look sick to be sick (that’s when the guilt begins). He couldn’t sleep again last night and spent most of the night vomitting, but he still went to school. He’s been missing more school lately and he’s afraid his teachers are going to all expect him to get his make-up work done asap. I was able to e-mail all of his teachers and educate them a little on Grave’s Disease and how truly sick my son is. Luckily, they’re all being pretty good about helping him get caught up.
Unfortunately, my son has so much trouble with his stomach that having something like a "pizza party" isn’t a good idea for him because it makes him so sick. He does love hanging out with his friends though. We’ve bought him all kind of gaming equipment to keep him entertained. I wish we could do pizza…it’s a lot cheaper ” title=”Smile” />
I’m still hoping that he’ll feel better once they get his meds right. It’s so unfair that he has to go through this because he’s really a good kid with bad luck. I wish there were some kind of organization that could give him something nice because he really deserves it.
Thanks for listening!
Amy

[skinny_chic]

#1074103

amyl wrote:Dianne,
You are right on target! My son doesn’t look all that sick but he’s a mess internally. There are days when even I question how sick he is….and then I remember that he doesn’t need to look sick to be sick (that’s when the guilt begins). He couldn’t sleep again last night and spent most of the night vomitting, but he still went to school. He’s been missing more school lately and he’s afraid his teachers are going to all expect him to get his make-up work done asap. I was able to e-mail all of his teachers and educate them a little on Grave’s Disease and how truly sick my son is. Luckily, they’re all being pretty good about helping him get caught up.
Unfortunately, my son has so much trouble with his stomach that having something like a "pizza party" isn’t a good idea for him because it makes him so sick. He does love hanging out with his friends though. We’ve bought him all kind of gaming equipment to keep him entertained. I wish we could do pizza…it’s a lot cheaper ” title=”Smile” />
I’m still hoping that he’ll feel better once they get his meds right. It’s so unfair that he has to go through this because he’s really a good kid with bad luck. I wish there were some kind of organization that could give him something nice because he really deserves it.
Thanks for listening!
Amy

Have you tried Gluten Free pizza?? I have celiac disease/ hyperthyroidism and wheat products make me sick..
I suffered for years with stomach issues, before being diagnosed..

[amyl]

#1074104

My son was tested for celiac disease and his test was negative. It’s not the wheat that bothers him, it’s the cheese….he can’t handle dairy when he’s in a hyper phase.

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