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  • Jessa
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    Post count: 4

    I was diagnosed with Graves’ about 9 months ago. At the time, I was extremely hyperthyroid (TSH >0.000006) and very symptomatic. My doctor started me on 60 mg methimazole, which we lowered to 40, then 15, and finally 5 mg over the course of 2 months. I was doing well on the 5 mg until the beginning of this year when my new endo (we moved in the fall) said I was starting to go hypothyroid (TSH 4.6). Cut the methimazole down to 2.5 mg, but 2 months later my TSH was up to 6.1, so he said to stop taking it altogether and have labs run again in 2 months. That was 3 weeks ago.

    Today I went to visit a new PCP. I told her about my history. She recommended I start taking a lot of different vitamins, including a high dose of iodine (1,000 mcg/day). I thought people who were hyperthyroid were generally supposed to limit iodine intake? Has anyone else heard of this recommendation? Would this make sense since I have gone hypo recently? She also recommended I take selenium daily. I intend to ask my endo about this before taking either, but was interested to know if this is common or not.

    Thanks!

    snelsen
    Participant
    Post count: 1909

    Hi, I am glad you plan to check with your endo. Good plan. And also check about the supplements as you plan to do.
    But I am compelled to wonder why the new family doc prescribed 1000mcg/day. I am led to wonder if you should really question if you should be going to her. Seems that endocrinology is not her strong suit. She might be fine for other stuff.

    I am providing for you, the following information straight from the NIH (National Institutes of Health) website. The normal amount for adult females is 150mcg We get our iodine from dairy, cheese, meat and iodized salt. To me it sounds very concerning for you to take almost seven times what is required and recommended. Again, I am very glad you are going to check this out with your endo.
    And yes, when we are super hyper, there are a VERY FEW foods that have high concentrations of iodine, which is better to avoid when we are hyper. Some fish, kelp should not be eaten in large quantities.

    Here’s the reference:
    Table 1 lists the current RDAs for iodine [2]. For infants from birth to 12 months, the FNB established an AI for iodine that is equivalent to the mean intake of iodine in healthy, breastfed infants in the United States.
    Table 1: Recommended Dietary Allowances (RDAs) for Iodine [2]
    Age Male Female Pregnancy Lactation
    Birth to 6 months 110 mcg* 110 mcg*
    7–12 months 130 mcg* 130 mcg*
    1–3 years 90 mcg 90 mcg
    4–8 years 90 mcg 90 mcg
    9–13 years 120 mcg 120 mcg
    14–18 years 150 mcg 150 mcg 220 mcg 290 mcg
    19+ years 150 mcg 150 mcg 220 mcg 290 mcg
    * Adequate Intake (AI)
    The World Health Organization (WHO), United Nations Children’s Fund (UNICEF), and the International Council for the Control of Iodine Deficiency Disorders (ICCIDD) recommend a slightly higher iodine intake for pregnant women of 250 mcg per day [3,7].
    Sources of Iodine
    Food
    Seaweed (such as kelp, nori, kombu, and wakame) is one of the best food sources of iodine, but it is highly variable in its content (Table 2) [5]. Other good sources include seafood, dairy products (partly due to the use of iodine feed supplements and iodophor sanitizing agents in the dairy industry [8]), grain products, and eggs. Dairy products, especially milk, and grain products are the major contributors of iodine to the American diet [9]. Iodine is also present in human breast milk [2,5] and infant formulas.

    Regarding selenium, there are A FEW studies that taking a small dose of selenium might decrease the symptoms and severity of TED (thyroid eye disease.) But not Graves’.

    I am wondering how you yourself feel? Do you have the symptoms of feeling hypo? If so, I think you will begin to feel better (if you are feeling hypo.)
    Shirley, just another patient, not a doctor (:

    Jessa
    Participant
    Post count: 4

    Thanks for the info. This is really helpful. I will definitely call my endo before doing anything. I am feeling somewhat hypo: a little more tired than usual (although as a working mom with 2 young kids, I’m not sure that’s so unusual…), always cold (in sunny CA), and have gained 4 lbs recently. This is still pretty new to me. Having started so hyper less than a year ago, I was surprised to end up hypo. I’ll be very curious to see what my next set of labs show…

    snelsen
    Participant
    Post count: 1909

    yep, I do think you are hypo! The feeling cold is quite pervasive, and I was (and to a mild extent, still am) the person who has the most clothes on. I love my polar tech micro fleece robe! It is tempting to walk out the door and to the store, wearing it. So nice to hear from you. How old are your kids? ARe you working full time? My daughter lives in So. Calif., too, near Pasadena.
    Shirley

    adenure
    Participant
    Post count: 491

    Just wanted to say hi! I’m in Southern CA too! I hope you get some answers and feel better soon! :)

    Jessa
    Participant
    Post count: 4

    Thanks! I have a 5 year old and a 2 year old and I work full time in LA so I’m pretty busy. :) I’m always wrapped up in my fleece these days (although when I was hyper last year I was super warm. Hoping to get back to a nice normal state soon…

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