[debruyn]

#1019709

Hello all-
I have had Graves for over 10 years now and have been on Tapozole. I have been at a normal level now for a few years and the doc decided to stop meds and see if I go into remission. I can tell you that remission is not happening! I know I am hyper again and will have labs on Monday that I’m sure will prove me correct. I’ve been around the block enough times.

I know all too well that any hormone fluctuation throws everything else into a tizzy and emotional reactions are common. The things is that I am feeling very insecure and almost awkward at times currently. I am a person with a very stable and realistic self-image who has been questioning myself for no apparent reason lately. The last time in my life that I felt like this, I was also very hyper.

This may all be in my head, but I am wondering if any one else out there can validate these feelings.

Shellie

[KAM]

#1073574

Hi Shellie,

Remember there is more to life than GD. We are all in difficult times. Todays financial storms and corporate restructuring are causing us all to question what we have done and what we are doing. Every where you go from print to radio to television all we get is how bad everything is and how much worst it is going to get. It’s not what is hapeening to you, it’s just what is happening. Hang in there, we’re all in this together.

Kam

[kaicee118]

#1073575

Shellie – I can certainly identify with hyperthyroidism making you not feel like yourself. I have not only felt bad physically, but emotionally. And it’s not just, "Well, I’m feeling really anxious," or "I’m feeling depressed"; it’s seems to change the way I think about and perceive things. I definitely relate to this.

The only comfort is that, now that I’m in my second round of Graves, I can identify these things more clearly as being related to the disease. That makes it not so scary, at least for me. Good luck – hope you feel better soon.

[npatterson]

#1073576

Shellie,

You may get ‘way more repilies to this that you want. I think we all feel (or have felt) like this, and it is certainly exacerbated by being hyper. The feeling that you knowwhat is going on is a good indicator. When you have "been there, done that," you know when you are now being awarded the t-shirt or the cup!

After all this time on anti-thyroid drugs, and you are really still hyper, are you and your doctor considering another treatment? That may be in the future for you. You have to looks at the toll this is taking on your body and bones.

Good luck,

[debruyn]

#1073577

Thank you all for taking the time to reply. Actually Nancy, the more replies the better!

My doctor took me off the meds in August because I had been stable for so long and he wanted to see if I’d go into remission. I am thinking that he will suggest RAI when I see him this month, but I have some eye symptoms. I am a professional singer, so surgury is out.

[Ski]

#1073578

You could also discuss going back on methimazole ~ it’s a legitimate continuing treatment, if you’re interested. Your doctor probably will suggest RAI ~ if you’re interested in pursuing that but are concerned about the eye symptoms, there was one study that showed that a concurrent course of steroids (a few weeks’ worth) reduced the risk of worsening eye symptoms to zero, but steroids carry their own risk, even in a short course, so that’d be something to discuss with your doctor ahead of time as well.

[debruyn]

#1073579

Wow- thanks! That’s great info to have. I would like to stay on the meds if possible. But the doc has been saying that I can’t do that forever.

[ElectricBlue107]

#1073580

Hey,

My doctor recently took me off of methizamole (I believe it’s the same thing) after 2 years and let me tell you I’m in nursing school and it was so hellacious I had to take my meds again at least for a week so I could have the energy to study. I’m fixing to go to my doc tomorrow to see how it turned out but I know the answer

Before I new I had GD and I was an emotional trainwreck (my mom thought I was on crystal meth and took me to doc and that’s how we found out haha) but recently when I started getting a little "off" it helped me straighten myself out by knowing what was really causing it and just trying to double think things through. My girlfriend understood a little when I’d be more tired but I think what helped me with the emotional issues is just seeing it for what it is.

Or maybe your GD messed you up so bad you’re not even really writing this and you’re just laying in bed haha

Kidding, anyways, not sure if that helps at all but yeah.

[DianneW]

#1073581

debruyn wrote:Wow- thanks! That’s great info to have. I would like to stay on the meds if possible. But the doc has been saying that I can’t do that forever.

You can tell your doc that it’s not forever yet.

[Author]

Posts