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#1019587

I am looking on this site for the Grave’s bulletins that used to be available.
I joined in 2001 and had access to them then. I re-connected to this site this year prior to
my thyroidectomy, but have not seen where I can get the bulletins.
It’s been a roller coaster since my surgery 2/5/09. I’m not feeling better yet. One day my heart is pounding, the
next I am too tired and nauseated to get out of bed. I feel both hyper & hypo symptoms
at the same time. I’m not sure what dose of Levothyroxin is best.
I was on 150 Mcg, now I’m at 100Mcg. I have been on replacement therapy only 2-3 weeks, and I have felt up & down
physically rather than emotionally. I don’t know what I will feel like tomorrow which is why
I had my thyroid out. I should not have to go through life worrying how I will feel & react
the next day. I feel very powerless.

Karen

[DianneW]

#1072709

Hi Karen,

The website is under construction, so for now it’s not possible to order the bulletins from the website. When the updates are finished it will be a different story. Many people are working hard on this. I apologize for the confusion in the meantime.

I’ve sent you a private message in an attempt to help you with resources in the interim.

This is very early in the process of dose adjustment, and sometimes it can be simply a matter of changes in levels that cause us to feel awful for awhile. Indeed, determining which are hyper and which are hypo symptoms can also be impossible to know. While we’re going through it , this seems like forever, but I can assure you that you’re much closer to feeling well than you probably know.

Do keep the lines of communication open with your doctor, and once you’ve done that, try to be patient. I was SO tired of hearing that word when I was where you are, but the doctor was right. It takes time, but you didn’t have the treatment for no reason, and you will feel the way you hope to again.

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