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  • snelsen
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    Post count: 1909

    Hi Ely,
    We all feel that way. It is totally hard. But instant gratification, and quick decisions about treatment of Graves’, are not compatible. Unfortunately, the opposite true. It really is. Not sure how post partum you are, but I had Graves’ during pregnancy, and full blown super hyperthyroidism after delivery. I was a nut case, both because of being hyper, plus being a new mom with fussy baby, breast feeding, job, etc. etc. It is super hard.

    BUT YOU WILL BE BETTER. There are slow steps we have to go through, but there is hope to believe that you will become the "normal you." So hold on to that thought.

    I do not know where you are with graves’. Have you had ATD’s and beta blockers? Have you any treatment at all? OR was this diagnosed when you were pregnant?

    It is very good idea to get copies of your labs, and the dictated notes of your endo. Just ask for a patient release of information form at the front desk, releasing to yourself. Have the office mail or fax them to you, whatever is fastest. That will help a lot regarding feeling uninformed, and waiting for information.

    So, educating yourself about Graves’ and labs is important. If you are experiencing tremors, you aren’t normal, regardless of the labs. Diagnosing where you are is a COMBINATION of labs and your own reporting of what is going on with you.

    It’s pretty difficult to say much else. WRite with a lot more info about when you were diagnosed, etc. etc. etc.
    Really, it is the "tincture of time," plus meds, plus your reporting of how you feel that will answer your question.

    I totallly understand not being patient, but it is not very helpful. When you DO get all regulated, and are taking thyroid hormone, the labs need to be at LEAST 6 weeks, and it is better to have two months, to know where you are with you dose of replacement hormone. Meds are adjusted by labs and how you feel. You should be getting TSH, T3 and T4. You may be having those results without knowing it. It tells a more complete story.

    Congrats on new baby. Boy or girl? Calm or fussy?
    Shirley

    ely2009
    Participant
    Post count: 199

    Thanks for your reply Shirley. I’ve been dxed with Graves since january 2009. It was controlled rather "quickly" with methimazole. I was on very low dose of methimazole when I learned I was pregnant last June. (I stopped meds immediately – pregnancy wasn’t on our radar. I had difficulty conceiving our two older children, so didn’t expect this one out of the blue.) My levels stayed normal throughout pregnancy. I am 8 weeks postpartum. I began feeling hyper about 10 days after delivery. Bloodwork confirmed that, but we didn’t begin meds because I am breastfeeding. My endo wanted to wait and see what my body would do. Three weeks after that, my TSH was back to normal. I’ve also had T3 and T4, and they were both normal as well. I’m having bloodwork again next week to make sure I’m staying normal without meds. I breastfed my others for more than a year – so my goal is to do the same with this baby. I know I can go on PTU, but would prefer to avoid meds. So I was just wondering what the lag time is for the already released hormone to leave my body. Hopefully, my thyroid is now putting out the right amount.

    I’m just frustrated – you know it’s hard to feel hyper and have a new baby. So much has been going on with my body. <img decoding=” title=”Smile” />

    She’s a girl – Elizabeth – and she’s WONDERFUL. My older two (7 and 11) adore her. She’s a pretty good baby, but likes to be close to mama A LOT!!!!

    Thanks again.

    ely2009
    Participant
    Post count: 199

    I had my TSH measured almost 3 weeks ago and it was back to "normal" after being slightly hyper for a few weeks. (My blood has been checked 3 times in the last 8 weeks as I am post-partum and my endo is keeping a close eye on me.) I have not taken any meds – it’s been fluctuating on it’s own.

    So if I’m "normal", how long will symptoms linger? I’m still experiencing tremors and just that "off" feeling. I’m not a patient person.

    Thanks.

    Emily

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