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  • jasmin24
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    Post count: 6

    Hi everyone! About 2 years ago I went into remission from Graves/Hoshimotos. I was scheduled for surgery and then, boom, remission.

    I have been very bad about keeping up with bloodwork because my insurance changed, but I have been healthy. Recently I started feeling really bad and went in for testing. I did not think it was my thyroid because my symptoms were different. Well, it was…and it has come back with a vengeance. :( I feel horrible 99% of the time and its difficult to just go to work to teach.

    I found a new endo because of insurance changes and I really like them. I went and they ordered more bloodwork, and a new uptake scan. They said they’d call me with results asap. Today I called them to alert them the results should be in. They called me after hours this afternoon and said they had just got them and that i need to come in next week…but instead of meeting with just the ARNP i met with last time, I need to see her with the main head doctor as well as get an ultrasound.

    Now my brain is going crazy (those of you with graves, you know how hyper our brains can go?) :) I’ve never had an ultrasound AFTER an uptake… I’m guessing I now have a nodule… but the urgency at the person on the phone as well as the fact that they are both going to meet with me has me very nervous. We know I have graves/hoshimtos …

    Am i just going crazy?

    snelsen
    Participant
    Post count: 1909

    No, of course you are not going crazy. (and yes, having a hyper brain right now, EVERYTHING is a big deal.)
    I am hoping that you can begin to look at your visit to the ARNP, the subsequent phone call to come in for an ultrasound after you uptake-as very reassuring news, rather than scary. It sounds like you have ended up with excellent medical care, nice people, and of course you want to meet the endo anyway. I am so relieved that you have not had to go to doctor after doctor, to fine the right “fit.” Lucky you!

    Regarding the ultrasound. It really is not that uncommon to do an ultrasound on your thyroid gland after your uptake. Not at all. And tons of folks have one or several thyroid nodules. You are getting great care! And I really do understand that you are worried and anxious. Having said that, what wonderful news that you did not get a phone call and be told to come in two months later for an ultrasound. (When I was hyper, I wanted everything to be done RIGHT NOW, and i wanted ANSWERS! So I find that reassuring.)

    Basically, I am giving you “my take” on your experience, and it pretty much is reassuring. I have had a couple benign thyroid nodules for over 50 years/!
    A long time ago, I had a SUB total thyroidectomy. THe thought then was to leave a tiny piece of thyroid to crank out just the right amount of thyroid hormone the rest of my life. It worked for about 35 years, then I got a little hypo (which is not that uncommon with people when they age) and now take Synthroid. Subsequently, a couple nodules grew on the thyroid tissue that remained.

    I am NOT going to tell you it is no big deal, for to you right now it is a very big deal. Do write back anytime, and definitely write back after you next appointment. Having Hashi and Graves’ is a challenge in itself. So I am glad you have returned to medical care and have insurance.
    Shirley

    jasmin24
    Participant
    Post count: 6

    Thanks ya. I guess I was concerned with the fact that it seemed more urgent than I’m used to… Having this for 6 years off and on is enough… sadly i’ve been to a LOT of endos… im glad to find aone i like

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