[KNEENAH]

#1058847

As i mentioned in my first post back in 2004 i was diagnosed with Graves 3yrs of stopping my meds on my own I am experiening syptoms. Of joint pain, muscle pain, hand tremors, anixety, palpitations just completely not myself. Ive seen two doctors one that said i had hasi and one that says i have graves. I just requested my uptake scan and it says this…

Cytology Report
Diagnosis: Right thyroid:FNA: No malignant cells identified. Findings are consistent with Lymphocytic thyroiditis (bethesda category II)

Microscopic Description: The smears show servral small clusters of uniform follicular cells with lypmphocytes and histiocytas in a hemorrhagic background. There is no papillary configuration or specific nuclear atypia

Gross Desription: Received in a coplin har are four direct smears fixed in ethanol labeled with the patients last name “RT” and speciman jar labeled with patients full name. “rt thyroid” and “AP ” IDENTIACL TO THAT PRINTED ON THE TEST REQUISTION

Then is shows two diaograms

Specimen 1 right thyroid
Follicular cells

Specimen 2 right Thyroid
Lymphocytes and hisitiocytes

Comments: Sugges serologic work up for hashimoto thyroditis

My boss is a doctor and keeps telling me its impossible i have graves.. I am lost in words and just wanna cry what do i have then? graves or hasi….

I dont see my original dr till the 23rd. I am currently taking ptu and my t4 levels have went down to normal after being slighint elevated i thoght i was coming out of remission and they caught it in time now i dont know..

please help..

Nina

[Kimberly]

#1170381

Hello – Keep in mind that we are fellow patients here, not doctors, so we can’t make a specific diagnosis. However, it looks like the results you posted are from a biopsy, as opposed to an uptake/scan.

Usually, the uptake/scan results will be expressed in terms of a % uptake at certain intervals (often 6 hours and 24 hours). The results will also note if the uptake is consistent throughout the thyroid gland (“diffuse”) or whether it is concentrated in specific areas (“hot nodules”).

Antibody testing might help shed some light as to what is going on. TSI and TRAb are diagnostic of Graves’ disease, so you might ask your doc about those tests.

Here’s hoping you get some relief soon!

P.S. I see several duplicate posts, so I am going to delete the others so that you receive all responses in this thread, instead of having them scattered.

[KNEENAH]

#1170378

i did a tsi on my own at work it was 110% i am now going to run to my car and ck those other results i got faxed to me i was soooo nervous i didnt even read correctly.. thanks for deleting those post….

[KNEENAH]

#1170379

i got it, it says

Impression: Heterogeneous uptake, Euthyroid uptake no focal dominant lateralizing mass effect.

The 24 hr uptake of the radioactive thyroidal iodine was with in normal limits at 17% (normal 10%-37%)

Findings: The thyroid is borderline enlarged and within normal limits in position above the sternal notch. Mild heterigencity and distrubution of activity was presented throughtout both lobes however no focal intrinsic laterlizing mass effect was apparent. The reported dominant right mid pole thyroid nodule
did not create lateralizing effect on the nuclear scan.

CAN SOMEONE EXPLAIN THAT TO ME IN ENGLISH…

[Bobbi]

#1170380

Kneenah, you need to get your doctor — even a GP — to translate the medicalese into ordinary English. We might try to translate, and it might even sound OK, but it might not be the right interpretation. So, at your next appointment, take the results and have the doctor give you the translation.

I understand how utterly frustrated you are right now, but I would caution you to focus on understanding what your doctors are saying, make sure you understand, and make sure that they are continuing to commit to figuring out what is causing the symptoms you have. If you insist on a diagnosis, and it truly isn’t what is causing the problem, then often the doctor will stop working on what IS causing the problem. And that is no help whatsoever. You need to find out what IS causing the symptoms.

There are patients who have both Graves/hyperthyroid and Hashimotos/hypothyroid antibodies. It complicates their lives immensely. You might ask your doctor if that is what is going on. But it looks like they are still searching for answers, not committed. So, try to ask questions to clarify things. The fact of the matter is that if you are currently “euthroid,” (i.e. have normal blood levels of thyroid hormone) then it’s possible something else is causing your symptoms.

[KNEENAH]

#1170382

Bobbi i have both Antibodies :0/ BUT i am currently at normal range thank god. I ask my doctor today. I am thinking maybe after a i have children i think about RAI. For now i am doing ok… :0/

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