[Ski]

#1072911

I will be thinking of you and praying for you both. You’re right, it just doesn’t seem fair! Is there no simple anti-nausea medicine they can put him on?? Even if nothing’s wrong (according to them ~ but I must question their judgment), at least he could rest….

[amyl]

#1072912

He has 4 different anti-nausea meds that he can take including Tigan, Zofran, Compazine and I can’t remember the last one. Most of the time, Zofran will stop the vomitting but not the nausea….so he feels nauseous but doesn’t throw up. The other meds don’t do a thing for the nausea. He’s even tried taking the Tigan and Zofran at the same time and it doesn’t do much of anything for him. This has been going on for so long now that I don’t even bother calling the doctor because they don’t help.
Amy

[RhondaG4]

#1072913

You both are in my prayers. I know how helpless it seems at times when your a mom and it feels like your not helping your child.

Now for maybe some not so wonderful parenting advice. If you time it just right…..let him eat whatever he wants right before the appt with the Endo. Ask your son to aim it if he can right at doc magoo. Then maybe Doc might get a clue, and decide to try something else that might help!!! Sometimes it helps if the problem is in their lap….literally!!!

You’re both in my prayers…and here is to good aiming!!!! ” title=”Wink” />

[amyl]

#1019622

Hi,
I’m just feeling the need to vent a little tonight. My son still isn’t showing any signs of going hypo (had RAI on 2/17) and in fact, his nausea is getting worse. He’s always nauseous but now he’s actually vomitting (sorry for being graphic) and has been since Sunday. Last night he was so frustrated that he ate everything he wanted to knowing he would be sick but it’s been so long since he he’s been able to eat that he just couldn’t take it any more. He said it all tasted WONDERFUL…but then the inevitable happened. I just can’t believe this can’t be fixed. We’ve been to so many doctors and none of them can make him feel better. Of course, I’m still hoping the nausea will abate once he goes hypo….but there aren’t any guarantees. I just want to fix him…it’s just not fair. Luckily, we see his Endo tomorrow but I honestly don’t believe he’s going to be able to help my son. He’ll just be like all the other doctors that order tons of tests and tell us everything is "normal"…..this is not normal.
Please pray for my son…he needs to get better.
Thanks for listening!!!!
Amy

[amyl]

#1072914

Rhonda….Thank you so much for the WONDERFUL advice!!! You really made me laugh and it felt so good
I am very tempted to do exactly what you suggested …. I’ll let you know how the appt. goes.
Thanks again for the much needed laugh!!!
Amy

[amyl]

#1072915

We just got back from seeing the Endo. It’s been 3 1/2 weeks since RAI so he said my son should start feeling better in the next couple of weeks (I hope he’s right). If my son is still exhibiting signs of being hyper at 8 weeks post RAI, he would send him for another round of RAI. He’s not expecting that to happen but he just wanted us to know. He’s also very hopeful that my son’s nausea will go away when he becomes hypo but he can’t guarantee it (CYA). Overall, I feel a little comforted. I guess we can wait a few more weeks for success to happen.
Thanks for all of the support!!
Amy

[PaulaK]

#1072916

Amy, My son, Eric, who will be 16 on April 24th, he took his RAI on Thursday, 3/12… he has been diagnosed with Graves’ for 8 years and has been taking tapazole of some sort the whole time, never gone into remission, the pedi endo don’t deal with the radiation, and the adult endo’s wouldn’t see under 18. We just got into a new endo (young man dr. phillips) on feb 18th… his uptake was high, and he only had a 15mcii? dose of the RAI… he’s been off his tapazole since the 18th of feb. and he’s going to start taking it again tomorrow, at 15mg’s a day.. and repeat labs in one week. He was not feeling real bad back in January regular labs he was elevated again, his TSH is mostly ALWAYS <.01 and his free t3 started at 555 back 8 years ago. They added the propranolol at 60mg’s for the first time ever at beginning of Feb, when the pedi endo’s office called with the latest labs… they had brought him to one 5mg tab in the am and one in the pm… he’s gotten down to 1/2 tab (2.5mg) a day at one time…
Even though Eric’s had this for 8 years, I’ve learned a lot more, it seems, in the last couple of weeks. Eric has felt super bad off the tapazole, (3 weeks now) and it’s 2 days past RAI, he’s like your son, with the nausea…I guess we should of waited until June for school to be out… as he’s signed up for high school baseball team (again) and is a real good student too (honor roll every quarter) he’s missed most of the last 3 weeks do to the elevated symptoms he’s feeling.
I just stumbled onto this web page from my FaceBook pages. You & your son are in my prayers. thanks for being here to share my son’s experience too. take care. Paula

[PaulaK]

#1072917

My son has never had any stomach problems of any kind before this…. he’s been in the same school for 3.5 years now, and just went to the school nurse for the first time.
Eric has been on tapazole for 8 years now, and just went off them cold turkey in February to start these tests and do the RAI treatment. I don’t think we knew what was going to happen to him, and I’m not sure why we didn’t know what toll it was going to take on his body
I’m sure we needed to do the RAI finally, we tried to go 2 years ago, and the adult endocrinologists wouldn’t take him at 14… actually, they still say they don’t see under 18. This Dr. Phillips talked with Eric’s pedi endo on the phone and agreed to take Eric as a patient.

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