Sometimes Graves’ Disease is so hard on the thyroid that it actually “kills” it, and then the patient will go hypo, and that way a person can be off methimazole and still hypothyroid. It sounds like you are taking methimazole right now though, is that correct? Anytime you’ve been off methimazole and then start taking it again, you’ll need to go through a period of figuring out the right dose to maintain normal levels, and this is a pretty typical beginning (dose is high enough to bring down thyroid levels, obviously, but may have brought your levels down too far) — you’ll need to manage the process with blood tests, but you should definitely be coordinating with your doctor’s office so you get to normal as quickly as possible. When we’ve been hyper, our judgment really can’t be trusted, you need to rely on blood tests to figure out exactly what to do next.
OH, one more thing. If you are off methimazole and hypo, it would be appropriate to take replacement thyroid hormone, and again, the amount you need would be managed by your doctor using blood tests, but your message doesn’t sound like that’s exactly what you’re dealing with.
I hope you’re back to normal and feeling better soon!
