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  • James
    Participant
    Post count: 115

    Hi Kavya,

    At the last Graves disease conference in October one of the physicians mentioned that about 4-5% of Graves patients could go hypo in time for no apparent reason. We do know that some Graves’ patients swing from hyper to hypo due to TPO antibodies at play. TPO antibodies are most often seen in patients with Hashimoto’s disease (Hypothyroidism). It is possible to have both antibodies (TSI & TPO) in which case thyroid regulation becomes more of a challenge for some people. Work with your Dr. to pinpoint exactly what is at play. There are various blood tests that your Dr. can order to help pinpoint the problem and give you some direction going forward. If your Dr. is only ordering TSH testing, ask him if it is worthwhile to check the FT3, FT4 and TPO as well. Keeping a copy of all lab reports is something that I have found helpful as well.

    Take care,

    James

    Anonymous
    Participant
    Post count: 93172

    Hi,
    My husband is 34 years old. He suffers from Graves disease. He has been on medication for the past 7 years. Since last June he was on 2.5 mg methimazole. His TSH levels were normal. The doctor felt that he is doing fine on the really low dosage of methimazole and he suggested stopping the medication. My husband stopped the medication for the past 2 months. We did his blood work yesterday and it showed that he is hypo. He was fine when he was on medication. Has anybody faced this situation? If so what was your prognosis and treatment plan. Please let me know.

    Thanks,
    Kavya.

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