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  • thyroidcrazy
    Participant
    Post count: 3

    HI, IWAS DIAGNOOISED, WITH GRAVES AND A TOXIC MULTINODULAR GOITER ABOUT 9 YRS AGO AND HAVE BEEN ON MEDS SINCE PTU FOR ABOUT 2 YRS. (HAD TO BE SWITCHED BECAUSE I WAS HAVING PROBLEMS ON IT)AND METHIMAZOLE NOW FOR ABOUT 7 YRS. RIGHT NOW I’M ON 10 MG. ADAY AND HAVE BEEN AS HIGH AS 50 MG.ADAY. WENT THIS DISEASE WANTS TO REAR ITS UGLY HEAD I GO UP QUITE A BIT. I’M NOW THINK ABOUT HAVING SURGERY. HOPE ALL GOES WELL WITH YOU

    annemc
    Participant
    Post count: 2

    How long can I safely remain on ATD Methimazole(Tapazole) before making a decision on a definitive treatment? I have been on meds for 2+ years. No remission and probably moderate level symptoms (insomnia, anxiety, some heart palpitations, muscle cramps, neck feels swollen most of the time. My eyes are dry, sensitive to light but an ophthalmologist at a medical center examined me and said I did not have any additional signs of TED.). Current Methimazole dosage: 5mg once daily, at this level for the past 6 months.

    My endo has been telling me two years is as long as he recommends, although when he could see that I was having difficulty making a decision on surgery vs. RAI, he told me I could also hold off for a while longer. However, I am getting sick of putting this big decision off and want to get it behind me. Although, if there is still a chance that I might go into remission, I would continue to hold off. Endo is not optimistic about remission happening to me at this point and feels that Methimazole is not good to be on for longer than 2 years.

    Would appreciate hearing about experiences others have had with length of time on Methimazole? Could my symptoms worsen if I stayed on ATD for another 6 months to a year or longer? I have also talked with a 2 women who did acupuncture along with meds and they both went into remission. Anyone else with this experience????

    DianneW
    Participant
    Post count: 292

    Antithyroid drugs are considered safe for long-term therapy, as long as the patient’s hyperthyroidism is controlled with a low dose. A 2005 study in the European Journal of Endocrinology on the matter compared long-term methimazole treatment with radioactive iodine treatment and concluded that they are comparable in terms of cost and safety. The patients in this study took methimazole for 10 years.

    Also, Dr. David Cooper said in his NEJM review article on antithyroid drugs that long-term therapy is a safe option.

    Some endocrinologists still are uncomfortable with treating their patients on ATDs long-term, and if your doctor is one of them you should talk to him about the reasons for that. His reasons may be good, or he may be outdated. You also have the right to discuss the articles I mentioned, or to get a second opinion, and weigh all the evidence you hear. Then, you get to decide for yourself what you want.

    Best wishes,

    grekson
    Participant
    Post count: 42

    Now I got to convince my mom to pay for the acupuncture.I want it to help me.

    Ski
    Participant
    Post count: 1569

    You may find that acupuncture is covered under your medical insurance. Check it out.

    skinny_chic
    Participant
    Post count: 3

    I just started methmazole last night.. It seems great so far.
    I have suffered with hyperthyroidism, since 1992..

    DianneW
    Participant
    Post count: 292

    Skinny_chic, what have you been doing to treat your hyperthyroidism since 1992?

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