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This is what I mean about the medicine roller coaster… been on double dose of meth (10mg 2xday + 25 mg beta blocker) since 2/26/13. Been managing thru the anxiety, brain fog, irritability by reducing some stress (went part time working from home). Been feeling OK (except for eye dryness, edema).
Wake up this morning with BP higher than normal (124/95) and a headache and very hyper feeling with irritability and anxiety to the point where I’m in tears for no reason. Nothing has happened, no one is home to provoke me, etc. I just don’t understand this…
My levels get checked tomorow (TSH, FreeT4, AST, ALT). I’m hoping for some improvement but I suspect I’m still hyper and more convinced that I want and need the TT…my surgical consult can’t come soon enough…it’s June 5 and I’m going to beg for sooner..
Thanks for being the only place I feel comfortable venting…no questions this time…just frustration.I’m so sorry you’re not feeling well. I have anxiety that comes on for no reason. I am not hyper anymore. Just anxious.
Try to do something that you enjoy today that will relax you. I just recently bought a yoga DVD and have been trying to work it into my routine.
I hope you feel better soon.
Big hugs.
Diane
I know exactly what you mean and I think this may be the part of this disease that I hate the most….. the uncertainty and unpredictability. Even when I’m not having an anxious moment I’m still worrying about when the next one will hit and I’m back to a point in my life where I really dread making any plans or commitments with people in the near or distant future. I may feel fine at the moment I accept the invitation but I immediately start worrying that I may be having a “bad day” when the commitment rolls around, etc. And of course the worrying and anticipation provokes a “bad day”. I can see how people become agoraphobic…. I would love it if I could stay home and never leave my house.
The sudden “out of the blue” episode happened to me last week and I ended up in the emergency room. One minute I was at work feeling pretty good and two hours later I was in the ER because my blood pressure kept climbing, and I have NEVER had high BP. They weren’t as panicked about it as I was but the BP stayed high for several days. Now, a week later, it’s back to normal. (shrug).
Another example: I will be active and productive all day and then be appropriately tired on the couch in the evening, half dozing and napping, and out of the blue I will start getting antsy and fidgeting around and tapping my feet and start pacing the room. I wonder why and what causes these sudden “adrenaline surges” to happen?
I don’t know if it will help you but it has been working for me lately: hop on a treadmill and walk briskly (or run) for a minute or two, or run in place, or jump up and down or put on some music and dance like a fool. We need to burn off these surges as quickly as they sneak up on us, or at least I do.
I hope this passes quickly and that we can all find a way to be prepared for and deal with these attacks that take us by surprise. Vent away….I’m sure most of us can totally relate.
SueDiane & Sue… thanks for feedback. I took my meds at the normal 8:00 a.m. and 9:00 a.m. and can tell I’m feeling slightly better. It appears that overnight when my meds start wearing off that the mornings are the worst.
Sue, I’m totally agreeing with the anticipation of future events… I always was a planner and looked forward to doing a variety of things…now I feel a little frozen about any commitments to events but on the other hand I don’t want to be controlled and house-bound by this disease..
Crazy…
So I’m going preservative-free eye drop and vitamin shopping at our local health store just to get out and do something. Then a walk with my favorite treatment…my ‘son’ Gabe the Boston Terrier who is just too cute for words!
Thanks for all the suggestions!
KarenSo glad that you have a “fur baby” to help relieve some stress. I think that good days and not so good days are pretty common, particularly in the early stages of Graves’. Sometimes I could relate the bad days to specific triggers (one of the worst was after a restaurant meal that I suspect was loaded with MSG), while other times not so much. Hopefully, your labs tomorrow will shed some further light.
Take care!
Good morning Karen,
I am sorry you are having a bad day. I agree that this blog is a safe place for us to share our emotions. I am very thankful for it. I said a prayer this morning for all of us suffering through the symptoms of Graves’ disease. I cry a lot too……..like all the time. Then I have to laugh because the tear really do make my eyes feel better….hahaha. I am glad you have your darling boy Gabe. I’ve got a yellow lab ‘Johann’. He’s great therapy. Music is amother escape that helps me feel better. Sometimes we need to take a retreat from all the research, anxiety and ‘what if’. Easier said than done.
Big hugs, LauraI think you and Gabe should walk to the local shelter and get a buddy for Gabe.
I am heavily into dog fostering and adopting and at the current time have four…. they keep me busy enough to not dwell on the physical ailments too much and when I am defeated and wanting to give up, they don’t let me. I’m thinking since the sun is shining I will leave the office soon and take a couple of them for a walk. (I’ve tried walking all four at once…. it’s a suicide mission!)
Take some deep breaths, find things to be grateful for (especially Gabe) and try to enjoy some time in nature. Dogs and nature ….. probably the world’s best medicine.
SueHaha Sue…I have one dog (Gabe), three house cats, and numerous ferals I take care of. I’m also very into animal welfare, especially establishment of no-skill shelters, etc. A worthy cause and a helpful distraction.
I’ve never tried fostering because I think I would keep everyone and then I would be without a husband….
Thanks for the exchange!
P.S. my day got better after I marched myself thru a miserable morning and got out of the house!Yes, I’m betting you WOULD be lousy at fostering. As a matter of fact I have a t-shirt that says “Failed Foster Mom” on it because once I get the animals healthy and able to release, I can’t give them up.
And regarding the hubby? He has known since we were dating: “Don’t make me choose or you’re gonna lose!”
Glad you’re feeling a little better. Tomorrow is another day and I’m sure it will be full of surprises for all of us.
Sue -
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