[allie]

#1059996

Hello!

I am new to this forum but have been dealing with thyroid issues for the past 10 months now and have some questions/needed to find others in my situation. I was told that I was hyperthyroid in July 2012 after completing a summer internship (I was a junior in college at the time). My docs started me on several medications (methimazole, dexamethasone, propanolol, etc).

When I finally found a “good” endo in October, he told me I needed to do RAI as best option, so I did that in November 2012. Since then things have been rough : ( I was a pretty typical 23 year old until all of this hit and i’m having some difficulty processing everything. I thought that with the RAI I would be getting better, but now I have a whole knew range of symptoms that are making me feel awful. My endo did labs every month, but now says my levels are good and i’ll be okay. Kind of frustrating with you know you aren’t well???

Started synthroid at the end of Feb 2013, but have been experiencing nausea, horrible mood swings, lower back pain and fatigue since then. The nausea and lack of appetite are the worst symptoms right now : (

I graduated from college last week. Should be one of the happiest times of my life, but I felt sick through the entire thing….now i’m taking some time off to conquer this health stuff, because I feel like I couldn’t even hold a full time job right now : ( I just want my life back to normal….Please send any advice or things you would suggest I try (diet, meds, etc). At this point I am feeling pretty hopeless.

[Kimberly]

#1179489

Hello and welcome! We are fellow patients here, not docs, but here are a couple of thoughts.

First, I would suggest getting in to your primary care provider for a complete physical. Fatigue and joint pain can potentially be associated with hypo, but I’m not familiar with the nausea as a classic symptom. It would help to rule out any other possible issues.

It can also be helpful to document in writing *all* of your symptoms. The more specific you can be, the better. For example, “I can’t walk up a flight of stairs without stopping to rest” or “I sleep for 10 hours a day and I still wake up exhausted” is more helpful to your doctor than “I’m Fatigued”.

It’s also helpful to get hard copies of your thyroid labs, so you can see for yourself where your levels are. The “normal” ranges for TSH, T4, and T3 are fairly wide, and some patients find that they feel their best at a specific point in the range. This might shed some additional light on what is going on.

Take care – and please keep us posted on how you are doing!

[Ann1960graves]

#1179490

I’m sorry to read about your illness. Maybe this will help…I have two boys your age, work, military trained and love their mom. Pick one, lol.

On a serious note you are right about being the time of your life. Things happen for a reason. I haven’t figured it out yet, btw. I am so sick and I have a full time job and a special needs child. I’m mad at my body for giving out. My youngest needs me.

My husband is a pulmanologist and critical care doctor. Honestly he is baffled by this disease. I’m lucky to have someone in the medical field helping, it would be worse if he wasn’t. Sad isn’t it?

If I repeat myself over and over and over please forgive me. I can remember who I tell what. So once I tell a story that’s it, it does not get repeated in fear I’ve already told that person.

Take care and let us know new news. Ann

[Talley]

#1179491

I agree, talk to your PCP and take all of your symptoms to him/her – I like the idea of writing it all down. Remember with one autoimmune disease, there might be more – the symptoms you are experiencing might not be related to your thyroid condition. This is my third autoimmune disease – seemed to be diagnosed with one every 15 years…

[Raspberry]

#1179492

I’ve had nausea with hypo when I’ve eaten too big a volume of food or too much high fat food – it’s like it weakens the digestion. Think about the opposite extreme with hyper – what couldn’t you eat and have it digested instantly? I’m sorry all this is going on for you so young, but there’s definitely room for improvement. Keep at it and second opinions aren’t a bad thing.

[Stymie]

#1179487

Hi,

Just wanted to chime in, I had some severe nausea when my endo put me on generic levothyroxine. It turns out there is lactose in Levo for a filler and I am lactose intolerant. You might want to check out what the fillers are in your med, as it might be something in there that doesn’t agree with you.

My new endo switched me to TIROSINT and I’m doing much better. Tirosint only has the thyroid hormone water and glycerin.

Hope you’re feeling better soon!

Diane

[allie]

#1179493

Thank you all so much for your kind words and support. I made an appointment with my new PCP next week and am hoping that he will be able to help! I will update when I have more info.

Thanks again!

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