To reinforce a bit of the great advice from Bobbi and Dianne . . . when my TSH was around .47 — a little higher even, I think — I had experiences quite similar to yours. I felt HORRIBLE! My heart was consistently beating at 100-120, I could barely keep my weight above 100 lbs, and I’d have these horrible heart surges (as I’d call them). I kept calling my endo who kept saying that my bloodwork was normal and that it COULDN’T be my thyroid. I requested a complete thyroid panel and EVERYTHING was normal, although my TSH was in the very low end of normal. I was so frustrated. Because my levels were normal, the endo sais it was a “coincidence” that I was experiencing these heart abnormalities and weight loss just three short weeks after going into remission, even though I’d had a pulse below 70 and weight at 105-110 my entire adult life. He told me it was probably anxiety . . . hmmmm. Now that my TSH is 1.4 I feel terrific, am back to 105 lbs and my pulse now remains below 90 most of the time.
So, even though my levels were normal, I was very symptomatic for hyperthyroidism. It’s difficult, but I think you really need to find a way to clearly convey your discomfort to an endocrinologist who will take your concerns seriously. If you can’t get the docs you’ve seen so far to consider that perhaps you are indeed suffering and its related to your thyroid, I’d start looking for a new doctor. One of the ways I found my current endo was to call different offices and ask to speak with a nurse . . . once I got a nurse, I specifically asked what the endo’s philosophy was about listening to patient’s symptoms and allowing people to have a voice in their treatment. From there, I had a good sense of what doctors to “interview.”
Good luck,
Mary
