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Hi Pixie,
You definitely need medical attention ~ please, regardless of the cost, go see a doctor. Hopefully one you already trust. Untreated hyperthyroidism is extremely dangerous, if that’s what’s going on. Your symptoms would imply hyperthyroidism, but I’m unsure about where you stand right now ~ you say that you had RAI, and you went moderately hypo. Does that mean you are currently taking thyroid hormone replacement? If so, the problem could be as easy as lowering your dose. If you are not taking thyroid hormone replacement, then you could be right, and your RAI may have destroyed enough tissue to regulate you for a while, but now the remaining tissue may be affected so severely by the antibodies that you’ve gone hyperthyroid again. This doesn’t fix itself. You need someone to treat you, one way or another. Whether it’s meds, another RAI, or surgery, you need to get your levels into the normal range before there is permanent damage to your body. Your three kids need you, and they need you healthy.
Please let us know how things are going with you.
I have been diagnosed for 4 years and have run the usual route. Super hyper, meds, RAI, Hypo(well moderately). Now divorced and no insurance. My levels are going up and RAI may not have completely worked. Tremors are back, my weight is dropping fast, I’m (almost) fainting again, can’t sleep, and I am scared. I have 3 small kids, and its impossible to explain to them why its hard to get moving. I guess I just need some encouragement. I’m 28 and feel 38. I knew this would be with me the duration, but I’m beginning to lose the light at the end of the tunnel.
Dear Pixie,
Let us know where you live, and maybe we can direct you to some help. If there are any teaching hospitals near you, they will have clinics. I went to one for almost two years–when I was without insurance. I got excellent care. Also, you might want to contact a social worker in your county. The Dept. of Health has a vested interest in keeping children healthy, and this extends to the parents, who must be healthy in order to care for the children. You must get in to see a doctor. Untreated, or under-treated Graves’ is SERIOUS.
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