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  • Bobbi
    Participant
    Post count: 1324

    I would recommend calling your doctor’s office back, and asking them for a copy of the blood work. It may not make any difference whatsoever. But I was told long ago that I had "normal" blood work when in fact my thyroid panel showed that I was hyperthyroid. Obviously hyperthyroid. I don’t know how often this sort of thing might happen. Hopefully not often. But if you can actually see the results, it would be better.

    erica
    Participant
    Post count: 38

    I don’t know what to feel. Happy the labs are normal, but COMPLETELY confused and upset that they are normal. I am apologizing in advance for a long post.

    I had tests taken, t3 t4, tsh, “free t3 ”, a lipid panel, a complete metabolic blood count, and a urinalysis. I was called just now and told they all came back normal. I had been diagnosed with Graves disease at 26 (at the time it was in an extreme state due to not getting treatment), I took PTU for around 2 years (going against medical advice to remove the thyroid). I was in a remission state, stopped taking the ptu and felt better than I had in years! I actually just ignored the fact I ever even had Graves. Now, I am 33, almost 34 and over the last 6 months or so, I have been accumulating the same yucky symptoms that I had when I was diagnosed. Ignoring them as long as I could, I finally couldn’t deal any longer and went in for a blood test. I was looking forward to the lab call that would tell me I needed PTU again, so I could get on the road to feeling better soon.

    Now, hearing my labs are normal, what the heck do I do with all these crazy symptoms? I swear I am having the SAME symptoms as before when I had Graves! I can’t go on this way and don’t know what to do now. I think about advice I have given to others when they say their labs have come back normal, but it is so different when it actually happens to oneself.

    Any advice will be appreciated. The first advice I could give myself would be the most simple, go back to the doctor. The only problem is I can’t, well, I can, but I will now have to pay out of pocket, I don’t see how my Husband and I can do that. My preventative appointment was with a general practitioner (which I used to get the script for the labs) was covered. I felt bad at the appointment because I couldn’t even be honest with the doctor, because if I was honest the tests would be marked as “diagnostic” and not covered by my insurance, meaning I would have to pay for them, which I can’t. Our deductible is 4 grand. I was straight up with the doc and told her my situation, she told me not to tell her my health record, that way all the tests would be “preventative” and covered.

    I will research online, but grrrr, I am feeling more and more like I did when my endo told me my thyroid problem was serious. My good endo is in Cleveland and I live in AZ now with my Husband and bad insurance. We have been together 3 years this june and married for one. It is hurting us.

    Here is what I am feeling: hair loss, rapid heartbeats, palpitations, racing thoughts, very moody, dry eyes, aching muscles-especially my legs, sensitivity to light, weird dry skin on my shins, crying bouts, shaky hands, sweating-especially my feet, hungry and thirsty all the time, anxiety like crazy, jumpy, headaches, dizziness.

    When my husband comes home from work he is not going to understand. I really try not to mention any of the above symptoms to him, but sometimes I can’t help it. He wants me to be ‘fixed” with medicine so we can move on and now with the results I don’t know what to tell him. I am scared he is going to think all of this is in my head. What do I do next???

    Thanks, erica

    erica
    Participant
    Post count: 38

    Thanks very much, yes they will come in the mail. I told my Husband this morning and just as I thought, He made comments about it being "just in my head"…it hurt my feelings, but i try not to take it personally. it is depressing not knowing what to do now…but i am going to just keep eating healthy and research about low income clinics.

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