[Anonymous]

#1128151

to bev: I usually show “normal” levels also and they do not believe me that this is the thyroid. I feel like everyone thinks I’m okay by just seeing me, not appearing sick unless I say something. I feel like I am dying inside. I feel terrible. I am so weak, my body hurts bad, especially my legs. If I didn’t have the pain medicine, I would not be able to walk each day. I lost my job 5 years ago and we have had a hard time since with finances. It helps me to know that I am not alone and that I am headed in the right direction, meaning (my mind has been right the whole time, that it is the thyroid). Hang in there, maybe we can get the help we need, so we can enjoy life again!
Rose

[Anonymous]

#1128152

I suggest you get a copy of Dr. Ridha Arem’s book “The Thyroid Solution”. It goes into detail about the emotional issues, and his opinion is that a proper TSH for someone on thyroid replacement is between 0.5 and 2.0. He also recommends dual hormone (T4 plus T3) therapy for those who aren’t returned to good health on T4 alone.

Read the book and find a doctor who will work with you according to those principles. That isn’t always very easy, but it’s worth the effort.

For me to feel well and not have hypo symptoms, my TSH must be under 1, and I also need both T3 and T4. It made such a difference in my life I could write a book chapter telling you about it.

I still have some problems with my emotions that didn’t exist before Graves’, and wonder if there is some damage to my brain from being undiagnosed hyperthyroid for so long. I’m learning to deal with it by viewing the emotional state as something separate from “who I am”, and still taking responsibility for my behavior and my effect on others.

Best wishes,
Dianne W
NGDF Asst. Online Facilitator

[Anonymous]

#1039636

I have been reading the messages on the bb and sit here in tears. I have been fighting this disease for many years yet am devastated when I get the physical/mental symptoms. I feel so inept and embarrassed by this inability to cope with anything. I have yet to understand the psychologic/and physical mafistations of this disease. Can anyone tell me if you can have the psychological and physical problems even when your bloodwork comes back normal. I go through these bouts as soon as my hormone levels go slightly high. I think I am becoming sensitized to the hormone. I am very blue – I am afraid that we will lose our house and many other things because of the drop in income. It is so devastating. I hope I can cope.

[Anonymous]

#1128153

Hi there i love this place , everyone here is so nice. Ok here is my question, i have been on Tap for 2 months i still don’t feel like myself. I am very very very very Moody all the time and my family are very nice about it my hubby just lets me rip, the kids just kinda sit there to and i hate this , is there anything that i can get from the Dr to get rid of all those kind of symptoms? Thanks all and god bless.
Annette

[Anonymous]

#1128154

I’ve been there and I used to call it being “evil” and it was a symptom of both hyper and hypo for me. (My poor hubby used to get his head ripped off regularly.) If you’ve been on Tapazole for two months, I’m guessing you’ll be getting your levels checked very soon and your doctor will be able to adjust your meds accordingly. The Tap may need to be increased or decreased–obviously you feel out of whack.

Hang in there,
Melinda

[Author]

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