[Trishj49]

#1060573

Hi, I am 48 and a nurse by profession and was diagnosed with Graves disease in September 2013 after a pulmonary embolism (blood clot in lung and severe anemia) they later said could have been from the Graves Disease . I was having muscle pain anxiety insomnia night sweats and only nice thing was weight loss. However in the end i saw a great endocrinologist and she started me on Tapazole as at that point radiation treatment wasnt an option as my thyroid was “too hot” and surgery not feasible. I had one reaction to the tapazole and my white blood cell count bottomed out she had me stop it for a couple weeks my count came up and i was restarted . I then moved cross county and am still on the Tapazole am due for a blood test but dont get insurance until Jan. 1st but i am starting to feel some of the same way as before nervous havinf tremors in hands depressive feelings muddy dull thinking and sweating at night again. I was just wondering if any of my fellow thyroid disease sufferers bodies do this even with medication on board.I have gotten the flu this week and cant seem to kick it the fever part. Any thoughts or feelings welcome . I am tired of feeling bad but I did have a year stretch of feeling good. Its good to have a place to talk even fellow nurses think everyone has hypothyroidism but no some of us sufferers are hyper. Thank you.

[Kimberly]

#1183451

Hello and welcome! It’s common for the dose of anti-thyroid meds to need adjusting throughout the Graves’ journey, so it would be good if you could get a set of labs ASAP to confirm whether you are in fact getting more hyper.

Since insurance is an issue, there are a number of free and low-cost health centers around the country; you can search by zip code if you look for the orange box at the bottom right-hand corner of this site:

(Note on links: if you click directly on the following link, you will need to use your browser’s “back” button to return to the boards after viewing, or you will have to log back in to the forum. As an alternative, you can right-click the link and open it in a new tab or new window)

http://bphc.hrsa.gov/

Another option might be to see if you could pay a discounted cash rate to get in to see a doctor and get labs done.

One final thought – if you’ve been taking decongestants like Sudafed while you’ve been ill, these can actually make symptoms of hyperthyroidism worse.

Take care – and keep us posted!

[Sneagle02]

#1183452

Hello.
I would think you need to see a doctor and get some labs to make sure your white count didn’t drop again. With a persistent fever, you could have a low white count and an infection that is difficult to clear.
On the other hand, I was well controlled on one dose of tapazole and then began to feel hyper and was and had to increase the dose significantly.
Good luck in sorting it out. It’s a pain in the neck (oops, pun not intended, my neck does not literally hurt)

Linda

[Sneagle02]

#1183453

Hello.
I would think you need to see a doctor and get some labs to make sure your white count didn’t drop again. With a persistent fever, you could have a low white count and an infection that is difficult to clear.
On the other hand, I was well controlled on one dose of tapazole and then began to feel hyper and was and had to increase the dose significantly.
Good luck in sorting it out. It’s a pain in the neck (oops, pun not intended, my neck does not literally hurt)

Linda

[Author]

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