[Ski]

#1070410

Yep, this can definitely happen. Not sure what the mechanism is, or the root cause exactly. You’re coming out of RAI, so it’s possible that your body is "recalibrating" with the new levels of thyroid hormone. If you’re really concerned, call your doctor and see about having blood drawn to see if there’s been a big change in your levels.

[Hopeful23]

#1070411

so this is a good thing. i did something i probably shouldnt have. i looked this up online and it was saying peripheral neuropathy.. //sp//. i have been in anxiety mode all day. i did have my appt moved up to this friday cause im gaining weight and eating almost close to nothing but when i do eat its turkey burgers and a healthy side dish. lol and chips. haha.

[Ski]

#1070412

Not all weight gain is a bad thing. So many weird things with Graves’! ” title=”Very Happy” />

[Hopeful23]

#1019262

muscle twitches/spams… its kind of all over. im freaking out.

[ely2009]

#1070413

I had those too. At first I just had hand tremors (which I STILL have), then the shakiness moved to my whole arm – then stomach/chest area. It freaked me out of course. Only lasted a few days.

Emily

[Hopeful23]

#1070414

hmmmm weird. ugh. this sucks huh… i just waana be better is that too much to ask…////tears///

[paloma]

#1070415

I am on beta blocker and atm, still have shaky hands, any kind of effort makes legs tremble, too. I avoided buying drinks in large bottles cuz I couldn’t open them. I took the advice I found here and now use a rubber glove to open things. It works! But I am in early stage of treatment. Haven’t seen endocrinologist yet. Hope it gets better for you. ” title=”Smile” />

Quote:

[paloma]

#1070416

"paloma" wrote:

I am on beta blocker and atm, still have shaky hands, any kind of effort makes legs tremble, too. I avoided buying drinks in large bottles cuz I couldn’t open them. I took the advice I found here and now use a rubber glove to open things. It works! But I am in early stage of treatment. Haven’t seen endocrinologist yet. Hope it gets better for you. ” title=”Smile” />

[julies]

#1070417

I have been off the medication for a week now, not that I was on it long enough but to lower my white blood count and cause me to have a cold for a month. It also caused two breakouts, that included; a hot/red face and arms, then the hives to lead to a rash. Did this happen to anyone else?

My doctor wants me to do RAI, after reading many post,I worrie becasue it does not sound like anyone is really feeling much betterfor this treatment. What is the sence? I am feeling ok now, just dry skin, hair falling out, what the sense getting all those other symtoms, they seem worse.

I have an appointment on July 16 for a second opinion, my first Endo, is telling me I can’t wait. What the heck!

Julies

[Madame_X]

#1070418

Funny you should mention that — that, and an increased heart rate of over 100 bpm was how my Graves was discovered.

When I went to my doc, he told me I was dehydrated and to go home. It took an ER visit and a two-three day admission to a med floor to find out what my problem really was.

[ewmb]

#1070419

I am now at week 6 after my RAI and I do feel so much better. I have had some muscle spasms as my levels have changed. My levels were back in normal range after three weeks. I had blood drawn this morning since I have been having some hypo symptoms and want to make sure I catch the change. RAI has been the best thing to happen to me since I found out I had Graves. This change was way faster than the change that happened to me when I went on methimazole. That was horrible, it took me months to feel better and I was unable to work etc.. and then I never really felt good. My spirits have been lifted immensely and I am now able to use my brain again. My family really does notice the change. I am able to take some of the load off of my husband. My libido has come back. My fingernails are no longer ridgey. I could list lots of things that have changed. It has not been easy but it was definitely the right thing for me. I have even been able to get back to walking. I went to my son’s college freshman orientation and spent two days walking a university campus. I am out of shape but I was able to participate! That is the best feeling. Missing out on life was the worst feeling.

Each person’s choice is a personal one but I was never afraid of RAI. I knew that the short time that the radiation would be in my body was a lot shorter than years on medication that might affect me adversely at any point. Medication and I haven’t always gotten along.

If you want to get it down on paper it might help. Make a list of the pros and cons of each thing you are considering. Make sure that you have your facts straight on each treatment, ask your doctor if he or she is good, to check over it with you. Education can make the decision easier. Getting well is the goal so whatever you pick it’s going to be a hard road if you aren’t happy with your treatment.

Good luck…..

ewmb

[Ski]

#1070420

Hi julies,

It’s hard to see here, but literally thousands (perhaps even millions) of patients have had RAI treatment, and I think it’s fair to say MOST of those patients have had successful treatment. Those people who have gone through the treatment and settled comfortably back into normal life do not seek out support boards such as this one, so we have almost no input from them for you to see. The people who come here are usually either new patients (such as yourself), or people who have experienced difficulty with their treatment and are now looking for solutions so they, too, can go back to a normal life and forget all about this.

The symptoms you are having now are due to a massive imbalance in the most important hormone in your body ~ it can be compared to fuel in a car. If you have too much, your body is like a car sitting with a brick on the gas pedal, stressing literally everything in your body.

It sounds like you’ve had a bad reaction to the ATDs, and so you should not take them. (By the way ~ if you tried one and it gave you a bad reaction, you should still be able to try the other. Ask your doctor about that.) The bottom line is that you must treat your hyperthyroidism somehow. Your body will just wear out under the strain.

After ATDs, the only other choices you have that are proven to bring down your thyroid hormone levels are destruction of your thyroid, either through RAI or surgery. I realize it seems a drastic step, but it’s important to treat this imbalance. Before any of the treatments for Graves’ were developed, it had a 50% fatality rate. I would wager that the other 50% were NOT feeling very well.

Remember, destroying your thyroid doesn’t leave you permanently hypothyroid ~ you take thyroid hormone replacement to bring your levels back to the normal range, and then you live your life euthyroid. Granted, there may be a short period where you experience hypothyroidism, but you will be vigilant about your levels, and you will get your replacement hormone dose adjusted until you feel right.

Leaving the hyperthyroidism untreated can lead to all sorts of other problems in your body, including heart conditions, extreme osteoporosis, and other conditions we can’t even imagine, which may get to such an advanced state that you are literally unable to correct them. PLEASE treat your condition and get well. I know that everyone who loves you will want that.

[graciehere]

#1070421

Aww Ely! I had these too. I take a beta blocker which has helped alot with the tremors. Rarely have them anymore! ” title=”Very Happy” /> Hang in there sweetie! "This too shall pass". Your in my thoughts and prayers. I’m so thankful to have this web site to turn to. People that don’t have grave’s have no idea the many aspects of it and what you go thru. Seeing other posts and reading the responses really has helped me alot. Take care of yourself!

Sheila

[RhondaG4]

#1070422

Hang in there….it is worth it getting treatment. I’m having some shakiness of arms and legs that I haden’t had before treatment, so I think my body is just trying to adjust. I’ve heard from some on here it can take up to 6 months for our bodies to adjust. I know it is very hard when you want to feel better now, but we are closer to feeling better then we were 6 months ago, Hugs Rhonda

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