[davidkang106]

#1059478

Hello! I am awaiting test results for Graves’ disease and I think I have been experiencing episodes of “Graves Rage” and was wondering if this sounds about right.

Some days I will be feeling somewhat okay, then all of a sudden, if something irritates me even a little, it’ll rapidly snowball into a rage full of hate and anger. Also, a big part of it is I will physically feel very stressed out. The physical urge to not clench my fists, or scream, or punch a wall and release it somehow is unbearable. After the episode, which varies how long, I will feel very fatigued (yet still stimulated, I think my adrenals are completely screwed up) and even sometimes end up taking a nap right after. When I do pass out, many times after this episodes in particular I will be awoken by sleep paralysis, which shows how fatigued my body actually was. When I wake up, I will feel very heavy, out of it, and weak. Also, a lot of the times after the initial rage part I will end up crying afterwords. Sometimes these rages are all chronic and I can’t stand anyone all day.

Does this sound like Graves’ Rage? Thanks so much.

[Deanna]

#1174933

Hi David,

while I am not a Grave’s patient, I am married to a man who was diagnosed with Graves a year ago. This rage sounds exactly what my husband goes though, including the crying and fatigue. It is very frustrating to watch him go through this “rage”. It is as though the smallest thing can set him off and nothing can stop it, He has to go through the whole thing until he cries and then sleeps it off. He is always very sorry but it is till tough to go through. There doesn’t seem to be any help other than the pills and waiting for him to stabilize.

Good luck to you,

DG

[AzGravesGuy]

#1174934

Exactly like my experiences. You are not going crazy. This will not last forever.

[snelsen]

#1174935

Same with me. THe sooner you get on ATD and a beta blocker, the better!

Dont let them mess around, get started asap. I was a raving maniac, irritable, impatient, crying, pretty much crazy. Yep. It is terrible.
You will be better. Hope you can begin tomorrow. What’s your heart rate? Just asking to be sure you are safe enough. If it is over 120, off the ER you should go.
Shirley

[Kimberly]

#1174936

@davidkang106 – No one here can tell you for sure if you are dealing with Graves’, but having thyroid hormone levels out of balance can absolutely affect emotions. Here is a link to a bulletin that touches on the subject:

(Note on links: if you click directly on the following link, you will need to use your browser’s “back” button to return to the boards after viewing, or you will have to log back in to the forum. As an alternative, you can right-click the link and open it in a new tab or new window).

http://gdatf.org/about/about-graves-disease/patient-education/whats-wrong-with-me/

@shirley – Good thought to keep tabs on the heart rate. As I recall, one of the challenges in davidkang106’s case is that all of his thyroid labs are currently in the normal range. Given the side effects that can come with ATDs, it will probably be a challenge to get a doc to recommend treatment until the lab values go out of range. (If at least the TSH goes out of range, the medical guidelines recommend treatment *if* the patient is symptomatic.) Hopefully, keeping a close eye on future labs will help provide a definitive diagnosis.

[vanillasky]

#1174937

I have exactly the same thing and they call me “mental” for it. I have destroyed things like my favorite lipstick, a pen and thrown things around the house, yelled and screamed and just over-reacted because I feel so awful and nobody understands why.

I always compare myself to “Rosemary Woodhouse.” If you ever saw that film “Rosemary’s Baby,” she knew what happened but no one believed her until the demon was born. That’s how I feel, all alone and being told all the time by husband that I need a shrink. Now I finally understand myself for acting out.
Graves Rage is very real and we could get to the point that we just want to be alone sometimes. I do that and isolate myself in the bedroom. That’s where I find peace of mind.

[PolishTym]

#1174938

You are not alone with these feelings. I think the big marker is when someone isn’t usually like this and it is new along with the hyperthyroidism.

[davidkang106]

#1174939

I’ve actually been containing all the bodily stress and adrenaline for a very long time, and it’s been all spilling out these past few days. Lexapro is the only thing keeping grounded. My body feels very, very very, light (and heavy at the same time) and I can’t help but move around and keeping wanting to release energy somehow. I feel like my body is going to explode with adrenaline.

Is this dangerous at all? Sometimes my whole body will shake and I can’t contain all the energy. Very disturbing..

Thanks for the support and feedback =].

[davidkang106]

#1174940

polishtym: And yes. No matter how stressed, depressed, or anxious I’ve been in the past, I’ve NEVER been like this.

[davidkang106]

#1174941

Kimberly: My TSH is currently out of range.

.46 0.49-4.67

Although very slight.. I hope it warrants me some treatment. I’m going to see a new doctor tomorrow and request the conclusive TRab blood test and a cortisol saliva test.

Ah.. psychomotor is the correct term. Kimberly.. I’m afraid of going into psychosis soon. The agitation has been incomprehensible…Am I just worrying too much? My body feels very very light.

[davidkang106]

#1174942

Perhaps it’s just my anxiety. Ugh..

[vanillasky]

#1174943

I have had anxiety for years. I never wondered why until this. My pc has me on Klonopin to stay calm and even that doesn’t work sometimes.:o

[Kimberly]

#1174944

@davidkang106 – Hopefully, this new doctor will help you put the puzzle pieces together…and get you some relief!

Remember that we are fellow patients here, not docs, so we aren’t allowed to give medical advice. If you have a particular issue that is causing you immediate worry, it’s certainly worth going to the ER or to an Urgent Care center to get it checked out…or even calling 911 if you aren’t able to seek out treatment. If you are worried about potential side effects from the Lexapro, that would definitely be worth a consult with a doctor or pharmacist.

Take care!

[beach45]

#1174945

Hello,

I had rage for years undiagnosed hyperthyroid/Graves; I did not know that until I got treated. At my full blown Graves in May 2010 my resting heart rate at times was 120-140 bpm and I waited a whole summer until I got on Methimazole and I used some natural stuff for my heart rate with the approval of a naturopathic nurse practitoner and my own doctor yet it is advised to go on a beta blocker right away for such a rapid resting heart rate. I had the rages on Methimazole 20 months as I was up and down too much even with the slightest increases or decreases. I went to a therapist and also to acupuncture. I will say now 6 months post RAI my moods (crossing fingers) are becoming more even and even though I’m struggling with being fat, this is one thing that I am grateful for; being calmer! I believe my levels 2 months on Generic Synthroid are closer to normal for me; I am going through major crisis right now with my mother and her health and health care and I’m not flipping out or screaming or wanting to kill like I did in the past; it was very scary and I did not know how to control it! So I can say from experience if a Graves patient gets treated timely and correctly and balanced right, things improve as believe me it is a miracle as I thought I’d be a raving lunatic the rest of my life! I lived with anxiety my entire life as I probably had thyroid issues off and on for years and was never correctly detected by doctors. I head for the hills from medication as I only believe in natural yet this Graves thing could not be corrected with natural and I had to use medications and it is pretty amazing I am on a Synthetic T4 drug yet I will say something has been working as my moods are more stable.

My TSH was very low for a few years prior to my Graves coming out and I wish someone had tested my Antibodies, TSI at the time! So I look back at moods and similar to what you explain and I say, well there must have been something brewing a long time; yet I am just a fellow poster here and not a doctor and I can only share my experience. Maybe I would have achieved remission on ATDs if I had been caught earlier who knows?!

Best of luck with this and working with a good doctor to guide you through to figure this out for you!….beach

[hyperm]

#1174946

I certainly can identify with you. I feel awful after them I don’t recognise them.

They are certainly not as bad as what they were when I had a thyroid. My husband still laughs at a few episodes, in particular how after 5 months of threatening letters from a company who cashed my cheque but denied all knowledge of it, suddenly within an hour of me having Graves rage on the phone, discovered the payment on their system

Code:

:rolleyes:

I still experience them when my bloods are off but it is a very mild form thankfully and passes very quickly. If you can, in the moment, get out the house and walk off the steam = less guilt and tail between the legs syndrome upon calming down.

X

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