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  • PaulaK
    Participant
    Post count: 4

    I am knew to this site. I just seen your post, and I’ll let you know that my son, Eric, will be 16 on April 24th, and has been diagnosed with Graves’ disease for 8 years, and he just went through RAI this past Thursday. He’s been on tapazole in some form the whole time with no remission. He feels pretty bad right now. I’m hoping for better soon. He starts the tapazole back up tomorrow. He didn’t feel that bad when we started this all on Feb. 18th …

    gemsile
    Participant
    Post count: 13

    Hello all,

    I first posted this about two months ago, and got a few replies of interested people. But I fear I’ve fallen out of touch with them!

    ***
    "My name is Jessica. I’m 19 and was diagnosed with Graves’ at age 15. I was lucky, the meds worked quickly, but it still effects me everyday. Having Graves’ has greatly effected my life, and as a film student, I’ve always wanted to do a film on experiences with graves’. This semester, I’m finally going to get the chance! But I can’t just use my story, I need yours too!

    If anyone is interested in sharing their experiences, I am looking for people who a) are adolescents with Graves’ (age 11-25ish?) or b) people who were first diagnosed as teenagers. I don’t mean to exclude people, but I feel there is not much out there on this from the "teen-age" view. We can do it through email correspondence or phone, or even web-cam!

    Thanks in advanced! Everyone is in my prayers."
    ***

    UPDATE: I am still moving ahead with the film and am in the "gathering" phase, though I’m running short on time now. I’m also now working with Peter Filocamo, president of NGDF in finding some sources. Still, any and all help and support is appreciated.

    I now have a set of questions that people can go through and answer, or free-writing is great too! I can’t wait to hear all your stories. If done well, this could be a great resource for new patients, as well as the ignorant general public.

    If you do respond, please watch for a private message with more information.

    Thanks and much love to everyone. Stay healthy and strong.

    gemsile
    Participant
    Post count: 13

    Thanks Paula, I sent you a message with some more information!

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