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  • shadowrider
    Participant
    February 5, 2013 at 1:16 pm
    Post count: 14
    #1059690

    Hello Everyone,
    I am fortunate to have been in remission for several years. My Endo & I managed my Graves with atm’s and vitamin supplements. Still I developed eye problems 1 yr from my initial diagnosis. Eventually having external radiation to my eyes, to kill off those crazy cells. I waited 1 yr to get corrective surgery; & I’m 100% glad I did. My eye surgeon repaired damaged muscles, and re-proportioned the fat that had swelled out of place. This was in Dec of 2010.
    Presently I’ve had 3 flare ups of this skin rash, dermatitis herpetiformis in the past 10 months, after having normal blood values, and no Graves for 3 + yrs.The eruptions are very uncomfortable, & they don’t heal. I’ve had to have cortisone injections at each outbreak to stop it.
    I’ve read about connections between this form of auto-immune & Graves. Anyone know anything about it? Only management tool discussed is going gluten free & using dapsone. Vitamins? Alternatives? Thanks for your feedback.

    snelsen
    Participant
    February 5, 2013 at 2:03 pm
    Post count: 1909
    #1176821

    Hi, it seems that you already know your diagnosis. And that you have a good doctor who has given you good information.
    I suggest you read this accurate website from NIH on this autoimmune disease. It reflects everything you have been told by your doc.
    Have you really tried to be gluten free? It sounds like this is very promising, the management tools (gluten and dapsone, as stated by your doc and in the NIH article.) I’d go with the advice you have already received, and review with your doc again. Seems like you have your answers. Have you tried a gluten free diet?

    http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002451/

    Shirley

    Kimberly
    Keymaster
    February 6, 2013 at 1:29 pm
    Post count: 4294
    #1176822

    Hello – I’ve not heard of this particular issue being related to Graves’. There is another skin condition (pretibial myxedema) that can occur in Graves’ patients, although this primarily impacts the skin on the shin and presents as an “orange peel” sort of rash.

    The link that Shirley provided is from a good source; hopefully, that will shed some additional light on what you are dealing with.

    Take care!
    Kimberly

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