[Kimberly]

#1062553

Hi Jules – T3 is actually the more active and powerful hormone between T3 and T4. What *should* happen is that if you are taking T4 as your replacement regimen, your body will convert the T4 into T3 on an “as needed” basis.

If you are actually adding T3 to your replacement regimen, then some docs do recommend splitting that up into multiple doses throughout the day.

Hopefully, someone who is on replacement hormone can jump in with some additional info. My recommendation is that it’s at least worth at least mentioning your symptoms to your doctor or pharmacist.

The connection between thyroid hormone levels and thyroid eye disease isn’t well-established, but some studies have suggested that being in a hypER *or* hypO state is correlated with worsening TED symptoms. So the “normal” range is where you want to be.

[snelsen]

#1062554

Hi again, Jules.
I am sure there is not connections with taking hormone replacement for Graves’s so you are "normal," and affecting TED one way or the other. Certainly it is important to manage the Graves’.

I have had TED for two years, and all the ramifications of it to the max, as you have read from my emails.

From you email, it does not seem that you are taking two thyroid meds, but only Synthroid, which is a very good idea to stick to Synthroid. From your last labs, it looks like you were really hyPO with TSH 33.18. When you get regulated, you will feel so much better re Graves’, and TED is a separate issue.

With TED I suggest you see a neuro-opthamologist, can’t recall if you are or are not. I imagine the steroid drops and injections will not last too long, but you will feel relieve when you are on them.

[Jules]

#1018075

Long Story short
I had Graves
then I had RAI 20 Mci 11/5/2010.

As iof jan 2011 I am on replacement synthroid.

When I get regulated on the dose does that mean that I will have more graves issues since my T3 and T4 are in the normal range? Normal meaning that 3 – 5 hours a day I am Hyper because of the meds and then considered normal on the blood work?

I hate the feeling I am getting evey afternoon about 5 hours on the nose after taking meds I feel like I am Hyper Pulse increases, hot flashes nervesness etc.

I ask this because I have TED and I am concerned now that I am on replacement if that causes my EYEs to get worse?

Waiting on my last blood draw results to see what is happening with my blood work.

Ok Blood Work
TSH 33.18 Normal .450 – 4.5
T-4 1.09 Mornal .82 – 1.77

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