[Ski]

#1064836

Euthyroid is the state of being at normal thyroid hormone levels (the third in the set of hypothyroid, hyperthyroid, and euthyroid).

Remission is defined as any period of time longer than one year when you remain euthyroid without having to take anything at all ~ no ATDs, no replacement hormone.

Typically we are all aiming for a euthyroid condition, no matter how we get there. If we are taking ATDs and remain euthyroid, great. If we are taking replacement hormone and remain euthyroid, great. All are euthyroid, so that’s a normal condition for the body.

We are not really sure what part of Graves’ exists after the thyroid condition has been successfully treated. They’re still trying to work out whether TED is actually a piece of Graves’, or whether it is its own separate entity that just happens to occur in almost 100% of Graves’ patients (but also occurs in patients with other thyroid conditions). Pre-tibial myxedema seems to be one element in the "syndrome" of Graves’, and like TED, can occur and go into remission on its own, without any relation to our thyroid status. So again, some relationship, but it’s uncertain what exactly that is.

We do know that some people here appear to be having continuing difficulties of one sort or another, separate from TED or PTM, even after having reached a euthyroid state. That is currently being researched, and we’ll probably learn where that stands at the conference.

Hyperthyroidism is extremely dangerous. Before treatment was available, it proved fatal about 50% of the time. That’s why we get treated. Once that problem is addressed, the other conditions (if any ~ as I said, no one’s sure of the connections) are not life threatening, so they get less attention in the research community.

[genuinruby]

#1064837

Thanks Ski, I was certain I could count on you to chime in. I hear over and over again things such as " I am in remission , since I have been off my meds for ‘x’ amount of months. But that would more likely be a case of eurothyroid rather than remission if I understand correctly. I personally have been eurothyroid off and on these past 3 years, but I have never felt well. So, if this is as good as it gets, I feel really sad. I don’t want to just feel "not-hyper".

[genuinruby]

#1018438

What is the difference between Remission and Eurothyroid?
If we still have Grave’s after RAI or Surgery what part of Grave"s do we have? Because, If I am still going to be on a roller-coaster, or feel sick and tired all the time, what is the point?

[Ski]

#1064838

If your levels have only been normal "off and on," then you’ve never reached stability and your body has not begun to completely heal. Once you can maintain normal levels that are right for you, you should begin to feel better, bit by bit. It’s not the end of your improvement yet.

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