[shaylee43]

#1059588

I’ve decided that I’m just going to go for it. I can’t take feeling the way I do anymore and I hope that this will help me out. I know it may get worse before it gets better but gosh darn it it’s gotta get better. I’m so glad I have this wonderful group as support.

My history: I was diagnosed two years ago, was on methimazole for 6 months then in remission for almost two years. Unfortunately things got all crazy again and they didn’t want to put me on ATD again. So I took a month of thinking about it and I’ve committed to RAI. I will keep you guys posted if you’d like. I know it was very, very helpful to read AZGuys experience with RAI because there are a lot of negative things out there.

[Bobbi]

#1175967

Good luck, Shaylee.

[AzGravesGuy]

#1175968

Hi Shaylee!

Your path to healing begins today. Congratulations!

Things might get scary for the next few days but rest assured we are all here for you. ( Anxiety is normal so look out for it and don’t feed into it. )

I wish you the best of luck and please keep us updated on your experience.

[vanillasky]

#1175969

Good luck to you. I am hoping to do RAI next year. I know what’s it like to feel awful 24/7. just today I was walking in the mall feeling horrible. sweating, heart racing and very, very warm. I look at all the people around me and wonder why I feel so sick. I have menopause in the mix and it is really depressing.

[adenure]

#1175970

How are you doing so far? Congratulations on taking a big step to being well again! Stay strong.

[shaylee43]

#1175971

Well I’m 15 hours out after swallowing the capsule and the only thing I’ve noticed is a little trouble swallowing. I slept through the night which was a nice change from the usual 3-4 hours I sleep regularly. The doctor did say that in a few days I may have more hyper symptoms, so I’m keeping an eye on that. Thanks for the warning about anxiety, it’s unfortunate that we sometimes have the very emotional side effects of this disease.

I’m just glad to have taken a step in the right direction (fingers crossed) I’ve only been diagnosed for 2 years but I think I’ve suffered from this for much longer probably something like 10 years.

I just want to say that we are our own best advocates, I knew I didnt feel right and went to various doctors and received so many crazy diagnosis of stress, being a hypochondriac and I was told that I was too stressed out and I needed to relax. I had sinus surgery, my gallbladder quit working and then finally receiving the Graves diagnosis all the pieces to this crazy puzzle fit together. It was nice to know that I wasn’t so crazy after all haha.

Thank you all for the well wishes I will keep you posted, if you have any questions feel free to ask, you can also PM me.

[smtucker]

#1175972

A full night of sleep will always make the world look like a better place! Will be looking for your reports of how you feel following this treatment.

[shaylee43]

#1175973

After 30 something hours the only weird things I have to report is extremely sweaty palms and feet, which ive never had in my life and my sense of taste is a bit off. I think being quarantined off in one room is harder than anything, my poor dogs don’t understand why I’m not showing them any loves, poor things.

Thankfully the doctor said I should be able to be around people by Christmas eve so I’m really looking forward to that. He says he gave me a relatively low dose of 29 milicuries. I’m just drinking water and abusing Netflix haha.

For those of you that had RAI already what dose did you get?

[gatorgirly]

#1175974

I only had 10 mCi, but my uptake was very high so I only needed a small amount to nuke the thyroid, which was successful after about six months. The sweatiness is probably the thyroid dumping. I felt like a big hyper mess for about two weeks if I remember correctly (it was almost two years ago now). Hope you start feeling better soon.

[shaylee43]

#1175975

Day 3:
The sweaty hands and feet have subsided, I woke up in the wee hours with a racing heart, anxiety and sweating. I was up for an hour then finally went back to sleep. I definitely don’t feel like eating because of the nausea I have but I force myself to choke something down. Otherwise I feel ok. We shall see what happens next.

[Kimberly]

#1175976

@shaylee43 – Thanks for the update! If the racing heart continues, definitely call your doctors’ office…he/she might be able to give you a prescription that will give you some symptom relief. Take care!

[shaylee43]

#1175977

I have a prescription for propranolo, however I just can’t tolerate it. I’ve quartered the pill and it still makes me feel very faint. I’m just trying to take it easy.

Thank you all for your replies, it’s nice to know I’m not alone and you all understand what I’m going through. My fiancé has been wonderful to me while I’ve been holed up in the guest bedroom, I’m thankful for him and all of you.

[smtucker]

#1175978

shaylee,

Sorry about the nausea; that is no fun at all. Have they considered something like compazine or zofran to help with this? Both of these drugs are generic and cheap. How much longer will you be locked away in the guest room?

[shaylee43]

#1175979

I’ll be locked up til tomorrow thankfully, I’m a little peeved that my doctor didnt mention anything about anxiety and palpitations and I can’t call their office until Wednesday, he’s on vacay for the next 2 weeks anyway.

My anxiety is pretty bad right now but at least I know what it’s from and I will just have to ride it out. Eek. Thanks again for your support. My neck is pretty sore so I guess that means its working.

[AzGravesGuy]

#1175980

The anxiety is tough after RAI. No, they don’t tell you to expect it and that IMO is a great disservice to patients everywhere.

It will stop eventually and when it does, it is fantastic! I hope you are over the peak of it today. Have you tried Atenolol for your palpitations? I could not tolerate the propranolol either and Atenolol was my saving grace. Ask about it when you call the office or swing by an urgent care for an ekg and a script if the palpitations are still bothersome.

Your sore neck means it IS working and that is reason for celebration. This will pay off eventually. Just keep your spirits up and know that everything you are experiencing right now is temporary.

Thank you for keeping us posted, we are all rooting for you!

P.S. I was advised to wipe everything in my iso room down with Windex after my alone time was up. The radiatiology tech said something specific in Windex bonds with the iodine molecule and removes the residue from door knobs, remotes, keyboards, bathroom areas all non porous surfaces. My first day out was spent OCD cleaning. I hope you do something fun instead.

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