[hyperm]

#1070762

Hi,

In a nut shell YES! I was tested on 3 seperate occassions for celiacs disease (turned out to be IBS) that was before I was diagnosed with GD. My tests were negative but now they believe that if they had done a TFT it would probably have came back as border line. Our family friend has GD and Celiacs and was told that there is a strong link. She is on a gluten free diet and actually manages very well.

If you were asking me personally as a mum I would request a blood test for celiacs before you put her on a gluten free diet. Both my boys have a cows milk intolerance and have to have soya milk or nutramagen formula and that was diagnosed with a blood test after presenting with symptoms. Not everyone with GD or TD go on to develop secondary conditions.

HTH
M x

[Mommy]

#1019310

Hi,

I have been reading a ton of books about thyroid disorders, celiac disease and autoimmune disorders in general. Everything I read points to the fact that thyroid disease (especially autoimmune thyroid disease like Graves’) is VERY strongly linked to gluten intolerance and/or celiac disease. I am thinking of taking my 4 year old daughter off of it completely. Has anyone tried this or heard anything about the link? Any suggestions? Or…any other nutritional changes I should be making for her?

Thanks so much,
Jennifer

[Mommy]

#1070763

Thank you! That is helpful to know. I did have her tested and we are waiting for the results. (I can’t remember if her dr. ordered the TFT though.) If not, I will request it. I know not everyone develops a secondary issue, but it just seems like it is so likely. Maybe I am just being paranoid. ” title=”Smile” /> I hope so!
Thank you! ” title=”Smile” />

[mamabear]

#1070764

May I ask why you are having her tested for Celiacs disease? Pure curiosity here.

I have a dd4 that has severe eczema and everyone kept saying oh it must be allergies or sensitivities but as I look into it more and am involved now with the eczema foundation I have realized she just has bad skin LOL. There is nothing in her diet that makes it worse or not and I have done food elimination at home to a point.

Hope what ever is ailing your little one is fixed soon.

[kaicee118]

#1070765

Hi – could you tell me what TFT means? I have a friend with Celiac who has always told me it’s related to Graves. However, I was tested for Celiac with an actual biopsy of tissue during a colonoscopy (like you, hyperm, I have been diagnosed with IBS for years) and they said it was negative. Would TFT be any different than having a tissue biopsy done? Thanks in advance.

Karen

[Kimberly]

#1070766

Hello – I do know some Graves’ patients who have gone completely gluten-free and swear by the results. Personally, I tried it for several months and found it much too high maintenance for my liking. Right now, I limit my wheat consumption to 3-4 times per week, which seems to agree with my digestive system moreso than consuming gluten at every meal…which I was doing before.

If you want to go 100% gluten free, you will find that there is gluten in a ton of foods other than the obvious bread and pasta…so you will definitely need extra time at the grocery store to read labels.

Good resources for a gluten-free diet are the magazine "Living Without", which you can find online or in stores like Whole Foods…and the blog "Gluten Free Girl" by Shauna James Ahern.

Best of luck!

[Mommy]

#1070767

Thanks for the replies. I do not really know what TFT is…but thought I would check into it since it was suggested. ” title=”Smile” />
My daughter has really bad eczema, gets tummy aches after eating, constipation and just has basically lost interest in meals. So…something is definitley going on. Since it seems to be so closely linked to Graves’, I think it would be good to just remove it from her diet. I know it will be really hard at first and will take a lot of extra time and effot, but it’s worth it to me. So…we’ll see!

[Kimberly]

#1070768

Mommy wrote: My daughter has really bad eczema, gets tummy aches after eating, constipation and just has basically lost interest in meals. So…something is definitley going on.

Hello – One other thing to add…I’ve heard of similar symptoms with food sensitivities or "delayed" allergies such as eggs and dairy. So if you don’t see an improvement on a gluten-free diet, you might consider that another allergen could be the culprit.

The best way to test for sensitivities or delayed allergies is to remove a specific food for a period of time, and then add it back to your diet, making a note of any symptoms that occur. If you don’t have any luck removing specific foods, there are companies that do blood testing for food allergies. The process is several hundred dollars and may not be 100% accurate. However, I found that it gave me a starting point when considering eliminating specific foods from my diet.

One caution – if you suspect that your daughter might be anaphylactic to certain foods (i.e. immediate, severe, allergic response) this needs to be handled by a medical professional, rather than testing on your own.

Good luck!

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