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I was diagnosed 2 weeks ago. I haven’t seen an endo yet, my Mom died last month, I’m trying to clear out her house, now this disease comes along. The more I learn about it, the more it scares me. The possibility of losing your sight, the skin probs, osteoporosis, exercising? (I’m a couch potato!), etc…
No one in my entire family has ever heard of it, they all think I’m lazy or depressed. They don’t get it. I’ve just lost the most important person in the world to me, and now I have a disease that will affect me for the rest of my life.
And I’m angry!! Why me? ” title=”Confused” /> Yeah, I know it’s pitiful, but that’s how I feel right now.Paloma,
Firstly, I am so sorry to hear about your mum – it must be a very trying and emotional time for you at the moment. Being diagnosed with GD can be overwhelming and there is a vast amount of information out there which can be very frightening. Most of the worse case scenarios are very rare – which I am sure some of the more experienced members of this forum will confirm.
There are many of us on here, who after diagnosis either researched on the internet of were given info by our endo, almost passed out with anxiety after reading up on GD. Its only natural for you to be worried about the unknown and with you loosing your mum I imagine that the anxiety is only hightened.
Deep breaths! You have your endo appointment in 2 weeks. Have you been started on medication? Many people live a reasonably normal life with GD, however, even those like myself who have had some issues recently are still managing to get through a day – all be it most days at the moment for me are hard.
You are right that there isn’t enough awareness out there with regards to thyroidism. Most people (including my work colleagues in the health professions) believe that its just weight loss/ gain. However, on here you will find the best group of people who will offer you so much support and advice.
Hang in there and lean on us. Please feel free to PM me.
Love and prayers
M xx
Firstly, thank you, hyperM. This site is just what I need at the mo. I have a bunch of questions for my pcp now. All I got from her was a printout about gd, not a lot of info!
It’s nice to know that all of you are out there trying to help each other. Since reading these posts, I’ve discovered that I have many of the symptoms other patients have reported. I just didn’t realize that they were related to gd. Unfortunately, I’m an "older woman" and that changes the way my treatment goes, if the literature is to be believed. I am trying to educate myself online, but this forum is an education in itself!
I may direct my family to this site, they need info more than I do. They still don’t understand why I’m always tired and achy, why my eyes bother me, why I can’t sleep, etc…and I do miss my Mom… ” title=”Sad” />
Again, Thanks for being here!Just wanted to say hang in there. Hope you got the pm’s. ” title=”Wink” />
Hang in there…and from what I’ve read times of stress can make GD worse….so if you didn’t notice your symtoms before you lost your mom, that maybe why you are noticing them more now. Sorry to hear about your mom, and we are all here for you. Take care of yourself, during times of stress especially. Just getting the Dx for me, and after I started researching exactly what GD was, that alone was stressful, and I didn’t have a death of a loved one to deal with at the time. Hugs and prayers, Rhonda
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