[lmac99a]

#1068177

Thanks Krystal,
I had RAI 3 weeks ago. Felt like I had a little energy today, actually did some baking. Just worried about my eyes since they feel swollen and don’t look the same shape as each other anymore. I guess I will ask my doc about seeing an eye guy. Yesterday I was wallowing in the depths of dispair but today is good. I seem to be flopping back and forth. This evening my feet felt cold, hope thats a good sign.

Laura

[Hopeful23]

#1018969

I just wanted to share this with the newer patients/anyone who wants to read it… LOL..

I thought I was NEVER going to feel like ME again. This awful disease taking over my life! Why me? Why now? Did I do something wrong? Could I have prevented this? Anxiety, panic, fear of the known and the unknown. Heart racing hard and strong, palpitations, profuse sweating, legs, arms, and hands trembling so fast it took every ounce of strength to walk to the kitchen to feed my bottomless pit… LOL… My life was stopped and tilted. I was so lost and alone. No one seemed to understand me. I prayed and I prayed. 4 years later- I wake up and I live again. No matter what route you chose/choose to go. Be strong, stay proactive in your health, ask questions, attend support groups… There is life after this diagnosis and IT will not be tomorrow for many but I promise you , it does get better and you do feel YOU again. You are going to have to FIGHT everyday. Its going to be hard and its going to take patience (haha, GD=no patience) GD is not an easy journey but sometimes the journey is the destination. There are GREAT facilitators on here and I hope all you newer GD patients take full use of this board. I wish you the best of luck and welcome you to the Family. If I were to go back four months I would never imagine I could feel this good again soo quickly after my RAI. I was lucky to respond quickly to both the RAI and the Synthroid. I think I was given a break since I was misdiagnosed for 3 years. haha. Again, I just want to give some encouragment, strength to the future for you all currently struggling with the new diagnosis. One thing don’t let anyone push TREATMENT on you. Do what makes you comfortable within reason.

Best regards
Krystal

[mamabear]

#1068178

Hopeful glad you are feeling better! ” title=”Smile” />

Imac, if ever you want a "pitty party"…come and join us. We do those well. We plan well and support it all the way with logs of support and comforting hugs! ” title=”Very Happy” />

[npatterson]

#1068179

Krystal,

What a joy to read your post! We all need to be able to hear this good news, so thanks for sharing. I remember when my doctor made an important change in my medicine. When I went back to see him, I said "I feel BETTER–and I can now remember what GOOD felt like!". He replied, "I am glad to hear it, because you usually say you feel like s–t". He had been writing that down everytime I saw him, because that IS what I said! That is also the day that I learned how important it is to give them FACTS. That’s why you see me suggesting lists of varying types.

Take care,

[hockey]

#1068180

Hi,

I’m new to this website – and blogging/posting too!

Here’s my problem – I was diagnosed with Graves 5.5 yrs ago when I first found out I was pregnant. I went on PTU for a bit, then came off as my thyroid regulated itself during pregnancy. When my son was 4 mths old, I had to go back on PTU. I was on the ATD for aprx. 5 mths, then got severe joint pain – I couldn’t move, I felt like I was 100 years old, and was sooooo tired all the time. I told my endo about it, and he totally dismissed it. I then went through x-rays with my gp on all my major joints to see if it was osteoarthritis which it was not. I ended up taking myself off ATDs and the pain went away. I was mildly overactive, but got pregnant without problems for baby#2, again thyroid went into remission for pregnancy but it didn’t last. I have been overactive for almost 3 years now. My husband is very anxious that I do something as I have been moody (feels like I have PMS quite often). My endo has been pushing RAI ever since I’ve had my children, but since I was breastfeeding, I was able to delay it. I have been thinkging of doing RAI, but I have seen so many negative posts about it, that I’m scared to do it – especially since it is a one-time thing, no going back – AND – my endo didn’t listen to my complaints the first time when I was on ATD and felt like I was going hypo (T4 was 12 & t3 was 2.9 – Canadian #s). I feel that he’s going to make me sooo hypo again that I will not have any energy to do things with my children, or for me to be active. I also don’t want to have to be away from my family after taking the RAI and fear jokes from some people that I am a green monster/freak for being radioactive, in addition to setting off alarms at the border or airport should I decide to travel. Any suggestions from people who have been there, done that? Or, someone who is also just waiting it out to see what happens? Thanks!

[Author]

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