[Bobbi]

#1067660

I am away from my library that includes medical test info, so I cannot address what each of those tests involves. Many of them are part of a complete thyroid panel — to look at your overall thyroid production. We do not typically get the complete thyroid panel very frequently once the diagnosis phase is over. It might be repeated occasionally, when the doctor has questions about what is happening and needs concrete information. The CBC, liver and renal function are sometimes looked at in patients on ATDs because the drug has the capability of causing problems with white cell count, and liver function. It is possible that others of the tests are to look at your antibody profile (TPO etc). If so, you doctor may be looking for antibodies that might be affecting your thyroid function. Some individuals have antibodies for both Graves and Hashimotos thyroiditis (which causes hypothyroidism). The best person to ask about the panel of tests requested, though is your doctor.

Your daughter is at a "slightly" greater risk of developing thyroid disease given you history. But the odds are still in her favor of not developing a problem. You, and then she, should just be sure to have thyroid tests routinely done through the years to make sure.

As to how long you would need to be away from her after RAI, your physician or the tech who gives you the treatment would tell you. It often has to do with the amount of RAI given to you, and the age of your child, etc. Typically, we are told to keep a distance from small children and small animals — not hold them up against our neck region, etc. for a week. But you should follow the instructions of your own doctor.

I hope you are feeling better soon.

[dakotamidnight]

#1018885

After much discussion with my Endo, we’re finally going for RAI. I’ve got one shot, and it if doesn’t work we’re going to surgery {her choice, I want to do RAI}.

Labs today were slightly hypo {but I attribute that to the broccoli I ate which makes me hypo} TSH was 9.45 and FT4 was 0.6.

I am to go back in two weeks after the lowered dose of methimazole {Changed from 10mg 2x daily to 10mg 1x daily} to see if I’m normal reading, as she said they would not do RAI if I were hypo, even with me being off meds for 5 days. This doesn’t make sense to me as in 5 days I’ll be hyper even if I started out as hypo.

Endo is running tests for TSI, CBC, Liver Profile, Renal Profile, FT3, FT4, TPO & Ab, Total T3, and TSH. Why so many tests? Most of these she has never run in the 2 years I’ve seen her. What are all these?

Also I have a 3yo daughter who I’m told is at risk for Graves – how long will I need to stay away from her? Would it be okay to stay in a hotel after wards? Take public bus?

I’m so glad to finally be doing something – I am so sick of being sick {lowered immune from the methimazole} and taking meds every 6 hours {propranolol & methimazole} and not being able to do things with my daughter because I’m too hyper or tired from going hypo.

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