[WWWI2]

#1059543

I was diagnosed last August at which time I was put on Methamazol. After several weeks I began to feel better than I had in a while as apparently I had hit “normal” ranges. After a good week, the dose was dropped by half and within 2 weeks, based on testing again, I was hyperT once again.

It took another several weeks to get the numbers down and and my T4 went low. Not sure if that means hypo, or not. Started to feel less bad, but not good and as a result of the rollar coaster and my doc’s lack of knowledge? interest? I found a new endo who last week added t4 to the mix.

I immedicately felt more alert, but still feel very unwell. So the question is, I realize I have yet to be stable, but is it uncommon to feel so lousy even tho I’m receiving treatment?

Thanks

[catstuart7]

#1175575

WWW12, in my experience so far the feeling of unwellness goes far longer than it should. In the beginning I believed it was because the docs weren’t doing their job but I now think it is more complicated than that – it actually is hard to find the right dosage for someone. I easily go hyper or hypo over very small dosage changes. Then there’s residual effects from being sick so long. There are success stories out there of people doing well on medication for years though like Kimberly here, so it is possible. You’ve only been at this for four months…it’s a long journey, I’m going on nine months and still don’t feel like I’m seeing the light of day but still trying.

[Kimberly]

#1175576

Hello – The fact that you’ve been on quite a hyper/hypo rollercoaster can also contribute to that feeling of “unwellness”. Now that you are getting started with this new doc, it can be helpful to keep a log of *specific* symptoms that you can bring to your next visit.

Hope that you can get some relief soon!

[WWWI2]

#1175577

My take from what you’ve said is that this may be another “long haul” thing, Cat. I have another seperate condition that emulates some of the Grave’s symptoms so tracking can be a little complicated, but I think that’s a very wise suggestion Kimberly.

Thank you for taking the time to respond.

WWWI2

[Carito71]

#1175578

Hello WWWI2,

I too became hypOthyroid with Methimazole. I was started at 30mg/day and kept on it for a long time, which made me hypO. I felt better but still not well. The Dr. started to decrease the dose and I’m now, after 6 months, on a small dose with numbers looking better and also feeling better. I do some times start to feel a little bit tired and not well but I don’t know why. I think it is my body still trying to recover from it all. I have labs again in two weeks and so hopefully the numbers have remain good. Hang in there. I hear that getting to the right dose can take time. Maybe with time and the right dose we can start to feel more normal.

Yes, low free Ts means hypO. It usually goes with elevated TSH. HyPER would be the opposite.

Hope you start to feel a lot better soon.

Caro

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