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  • Kimberly
    Keymaster
    Post count: 4294

    With our in-person events on hold for the foreseeable future, we are looking to host an online event or speaker series that would benefit our patient community. (The content would be made available on YouTube for those unable to attend live.) We’re looking for feedback on the format – do you have a preference? Please feel free to comment below, or hop over to Facebook or Twitter to take the poll.

    One full day – 8 hours
    Two half-days – 4 hours each
    Four sessions – 2 hours each*
    Six sessions – 90 minutes each**

    *one per week over four weeks
    *one per week over six weeks

    Facebook Poll: https://www.facebook.com/events/1642048682736535/permalink/2663588513915875/

    Twitter Poll: https://twitter.com/GDATF/status/1288579384178126848

    Kimberly
    Keymaster
    Post count: 4294

    Thanks to everyone who completed our survey regarding future online programming! Our community members overwhelmingly preferred to have a series of 90-minute webinars, rather one full day (or two half-days) of online programming. Two new poll questions…

    What topics would you like to hear about?

    Twitter: https://twitter.com/GDATF/status/1291078496123412481

    Facebook:
    https://www.facebook.com/events/1642048682736535/permalink/2669476706660389/

    What is your preferred breakdown of presentations vs. Q&A?

    Twitter: https://twitter.com/GDATF/status/1291079091077046272

    Facebook: https://www.facebook.com/events/1642048682736535/permalink/2669478029993590/

    aplicaciones
    Participant
    Post count: 2

    Hi-

    I have TED and I would like to know if Kaiser Permanente in the U.S. have any provider that work with the drug Tepezza or what should I do if it doesn’t cover it. I went to the Tepezza website and it doesn’t give any information regarding Kaiser P. Can I pay out of my pocket, but have the provider administer me the drug? Thank you for any response.

    Kimberly
    Keymaster
    Post count: 4294

    Hello – The first step would be to get a specific diagnosis of TED from your provider and a determination as to whether this is the right course of treatment for you. The next step would be going through your insurance company – and if they don’t cover, your doctor should be able to direct you to an assistance program.

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